ASPIRE Participates in Rare Across America

Rare Across America Congressional Meetings

Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates.

ASPIRE joined several Congressional meetings organized by Rare Disease Legislative Advocates (RDLA) on March 3rd and 4th, 2021 to talk about PANS PANDAS as well as issues that affect Rare Disease. Senators and Representatives were asked to support important rare disease FY 2022 appropriations priorities involving NIH, CDC and FDA. See more information.