March 23, 2023
New Autism Rates Published – 1 in 36
CDC’s Autism Numbers – 1 in 36 The newly published estimated Autism Prevalence rates by the Center for Disease Control and Prevention (CDC) report that 1 in 36 children...
Family Resources
December 14, 2022
Webinar – Beth Alison Maloney – Protecting Your Child: How Best to Advocate for Sick Children Without Increasing the Risk of Medical Child Abuse Accusations
Speaker: Beth Alison Maloney, Esq. Webinar: Protecting Your Child: How Best to Advocate for Sick Children Without Increasing the Risk of Medical Child Abuse Accusations View webinar: Recorded webinar...
November 18, 2022
Webinar – Julie Cox – Helping PANS Families Move From Grief to Empowerment
Speaker: Julie Cox, MSW, LCSW, PLLC Webinar: Helping PANS Families Move From Grief to Empowerment Register to View Recorded Webinar: Watch on Demand Please register even if you will not attend...
November 13, 2022
Toolkit – Testing & Antibiotic Usage for GAS in PANS & PANDAS
ASPIRE’S Professional Advisory Board publishes Testing & Antibiotic Usage for GAS in PANS & PANDAS The section below provides only a brief overview of the Professional Advisory Board...
October 23, 2022
New IVIG Study
In PANS patients, all pyschometric endpoints studied exhibited statistically significant decreases following 6 cycles (infusions) of IVIG as well as durability of response for up to 46 weeks in a...
September 28, 2022
What do you want people to know about PANS PANDAS?
Please help ASPIRE with a PANS Awareness Day project. Please submit one or two sentences on “What do you want people to know about PANS/PANDAS?” via the form below. We...
September 19, 2022
The Invisible Cost Of Caring For A Child With A Health Condition
“So many people say, ‘What are you doing for yourself?’ which is a nice sentiment, but it just further divides me and those people,” Taylor said. “What they don’t understand is that I...
August 18, 2022
Toolkit – PANS PANDAS Comprehensive Educator Toolkit for School Staff, Teachers, and School Nurses
PANS PANDAS Comprehensive Educator Toolkit for School Staff, Teachers, and School Nurse PANS PANDAS in the School Setting – Impacts and Supports This PANS PANDAS Comprehensive Educator...
February 21, 2022
PANDAS is Autoimmune Encephalitis
"Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infection or PANDAS can also be called post-streptococcal autoimmune basal ganglia...
February 15, 2022
Sibling Support
We know there is no parenting playbook; there certainly isn’t one when you add PANS/PANDAS to the mix. As parents, we are often second-guessing our decisions. So, as you read...
July 24, 2021
PANS & Eating Restrictions at School & Handout
PANS & Eating Restrictions This section on Restrictive Eatings at School is part of a larger section on Restrictive Eating seen in PANS PANDAS. Make sure to read the entire...
June 15, 2021
Medication Log Sheet
PANS PANDAS is medically complex. In order to have an informed discussion with your providers, it can be helpful to track symptoms, exposures to triggers, and medications. This Medication Log...