May 8, 2025
Nebraska ChitChat Meet Up
In-Person - Lincoln, NE - Saturday, July 19 - 10:00am-12:00pm...
Family Resources
May 1, 2025
New York/Connecticut ChitChat Meet Up
In-Person - Danbury, CT - Thursday, June 12 - 10:00am-12:00pm...
April 17, 2025
PANS & Eating Disorder/Food Restrictions & Toolkits/Handouts
PANS PANDAS & Eating Disorders/Food Restrictions – Full Packet of Recent studies and Flyer. Please note that the Flyer is also available in two poster sizes...
April 6, 2025
Chicago ChitChat Meetup
Meeting has been cancelled due to personal reasons. We will notify when it has been rescheduled. Thank...
March 10, 2025
The Sibling Experience in PANS/PANDAS: Understanding the Challenges & Needs
Living with a sibling affected by PANS profoundly impacts well-being—fear of outbursts, limited social opportunities, and the isolation of not having the words or knowledge to explain the...
March 8, 2025
Managing Needle Fear: Practical Tips for Blood Draws & Infusions
Needle fear is real, and you’re not alone. Whether it’s a quick blood draw or a longer infusion, anxiety can make the experience stressful. For those with PANS/PANDAS, it may...
March 8, 2025
Mastering the Art of Swallowing Pills: A Step-by-Step Guide
Swallowing pills can be intimidating for many, especially for those with PANS PANDAS due to OCD, sensory issues, anxiety, or difficulty swallowing. The good news is that with some practice...
March 8, 2025
Hydration & IVIG: Why It Matters
Staying well-hydrated before, during, and after IVIG can help minimize side effects like headaches, dizziness, fatigue, and muscle cramps. Here’s how to make hydration work for you: Download...
