February 24, 2020
CTPPP Support Meetings – Date Change
CTPPP Wilton Meet Up Group will now be meeting on the First Wednesday of the...
Blog
February 23, 2020
ASPIRE Quarterly Board Meeting
PANS/PANDAS is a rough road but coming to the ASPIRE Board Meeting table and mapping out a plan for the next quarter and beyond is all four of these opening words: productive, fun, energizing,...
February 22, 2020
Big Thank You to Blue Gallery!
A million thank you’s to Steve Dupler who owns the fabulous Blue Gallery! He opened the doors to ASPIRE so we could begin work on an advocacy project. Blue Gallery is a gem of a NYC venue and...
February 22, 2020
PANDAS is Autoimmune Encephalitis – World Encephalitis Day is February 22
"Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infection or PANDAS can also be called post-streptococcal autoimmune basal ganglia encephalitis. Like other forms of...
February 12, 2020
Free Online Seminar for Educators on PANDAS/PANS
Free Online Seminar for Educators on PANDAS/PANS is now available through the University at Buffalo Occupational Therapy and the incredible Jan Trigilio...
January 24, 2020
Study Participants Needed in CT and Surrounding States
Connecticut Families and Patients – Attention – Participants needed for Study. See Detail below. Questions should be directed to the researchers listed below. If you would like a pdf of...
January 10, 2020
Event – Understanding Neuroimmune and Neurodevelopmental Disorders
ASPIRE is proud to sponsor this educational event. Understanding Neuroimmune and Neurodevelopmental...
January 7, 2020
NY/NJ/CT PANS/PANDAS Support Meet Up Group
NY/NJ/CT PANS/PANDAS Support Meet Up group Sunday, January 12 2 PM – 4 PM Panera Bread – 377 Tarrytown Rd, White Plains, NY Questions? Contact Lisa/ PANS...
December 19, 2019
My Story About PANS/PANDAS
by Owen Ross, Kerri Ross, Dr. Rachel Avery Looking for a great back-to-school book to help teach your kiddo’s classmates (and even teachers) about PANS/PANDAS? It is a wonderful book...
Anti-lysoganglioside and other anti-neuronal autoantibodies in post-treatment Lyme Disease and Erythema Migrans after repeat infection
Anti-lysoganglioside and other anti-neuronal autoantibodies in post-treatment Lyme Disease and Erythema Migrans after repeat infection
Brian A.Fallon, BarbaraStrobino, SeanReim, JulieStoner, Madeleine W.Cunningham Brain, Behavior, & Immunity – Health, Volume 2, February 2020, 100015. https://doi.org/10.1016/j.bbih.2019.100015
This study examines molecular mimicry targeting neural tissue after Borrelia burgdorferi (Bb) infection. Patients with Lyme disease have a greater frequency of specific anti-neuronal autoantibodies and functional neuronal activation compared to community controls without a history of Lyme disease.
“Highlights
- The EM + prior LD group had significantly elevated anti-neuronal antibodies.
- The EM + prior LD group had significantly elevated CaM Kinase activation.
- Anti-Lysoganglioside Antibodies are significantly elevated in the PTLS group.
- Prior infection may lead to immune priming and increased autoantibodies.”
October 28, 2019
ASPIRE & Dr. Maeve O’Connor – Prepping for Immunology Appointments
Preparing for Immunology Appointments & What Immunologists Should Know About PANS Wendy Nawara, MSW, ASPIRE Past President & Founding Board Member, interviews Maeve E. O’Connor, MD FACAAI...
October 28, 2019
ASPIRE & Dr. Maeve O’Connor – Changing Views on IVIG at the AAP
Wendy Nawara, MSW, ASPIRE Past President & Founding Board Member, interviews Maeve E. O’Connor, MD FACAAI FAAAAI FACP on the Changing Views at AAP on IVIG PANS/PANDAS. Full video...