Blog
May 8, 2025
New York/Connecticut ChitChat Meet Up
In-Person - Danbury, CT - Thursday, June 12 - 10:00am-12:00pm...
Haylie’s Healing Journey: A Story of Strength and Resilience
The key to treatment was aggressive intervention. But finding the right doctors was a battle. Most practitioners were unaware of PANS or didn’t believe in its severity. We were lucky to get a...
April 22, 2025
Legislative Talking/Writing Points and Examples
General Legislative Information How to talk to your state representative How to Get Started Find your State Representative and State Senator in your district Look Up Your Legislator! ASPIRE...
April 22, 2025
Legislative Action: Information for Legislators Toolkit
Download Toolkit Legislative Action: Information for Legislators Toolkit Download ASPIRE’s PANS/PANDAS Legislative Action: Information for Legislators Toolkit. This Legislative Toolkit...
April 22, 2025
PANS Legislative Recap
Start the Legislative Process Are you interested in starting the legislative process in your state? Meet with the ASPIRE Legislative Working Group (ALWG) to help you get started. Your voice...
April 21, 2025
Legislative Talking Tips for PANS PANDAS
ASPIRE is working to support national efforts to pass legislation requiring insurance coverage for the treatment of PANS and PANDAS. By sharing your story and keeping the conversation clear,...
April 20, 2025
Louisiana PANS PANDAS Updates
Louisiana PANS PANDAS Action The Louisiana PANS PANDAS Action Committee (LPPA) is a newly formed group that is leading the charge for legislative change in the state to support those...
April 17, 2025
PANS & Eating Disorder/Food Restrictions & Toolkits/Handouts
PANS PANDAS & Eating Disorders/Food Restrictions – Full Packet of Recent studies and Flyer. Please note that the Flyer is also available in two poster sizes...
April 16, 2025
Nutrition for PANS & PANDAS
Nutrition is vital for kids with PANS/PANDAS, conditions tied to OCD and infections like strep that disrupt eating habits, causing nutrient deficiencies and gut issues. Registered Dietitians (RDs)...
April 2, 2025
Louisiana families fight rare condition
PANS or PANDAS refers to what some doctors call Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. It’s an often misunderstood and misdiagnosed disease that...
March 20, 2025
Seizures Linked to Bartonella and Babesia
Imagine a child suffering from seizures, only to discover years later that the cause might be tied to a cat scratch and an insect bite. A groundbreaking case study from North Carolina State...