April 16, 2020
COVID-19 Lindsey Wells, ND on Melatonin, Quercetin, Vitamin C
We are so pleased to have Lindsey Wells, ND, join in our series of Q&As on COVID-19. Her focus will be on Vitamin C, Melatonin, and...
Benefits of IVIG in Pediatric Acute-Onset Neuropsychiatric Syndrome
Benefits of IVIG in Pediatric Acute-Onset Neuropsychiatric Syndrome
Isaac Melamed, Roger Kobayashi, Maeve O’Connor, Ai Lan Kobayashi, Andrew Schechterman, Melinda Heffron, Sharon Canterberry, Holly Miranda, Nazia Rashid Neurology Apr 14 2020, 94
“Conclusions: In PANS, which may be associated with an underlying immune dysregulation, IVIG [Octagam 5%] successfully ameliorated psychological symptoms and dysfunction, with sustained benefits for at least 8 weeks, and up to 46 weeks, following the final infusion. In addition, baseline immune and autoimmune profiles demonstrated significant elevations in a majority of subjects, which requires further evaluation, characterization, and study to clarify the potential immune dysfunction by which PANS manifests and progresses.”
April 14, 2020
PANS Advisory Council in Texas
Governor Abbott Appoints Fourteen To Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council Governor Greg Abbott has appointed Lisa Hardy, ASPIRE Board member along...
April 14, 2020
Occupational Therapy for PANS/PANDAS
Michelle Newby, BHSc(OT), MSc discusses with ASPIRE how occupational therapy helps PANS/PANDAS patients. Michelle Newby BHSc(OT), MSc, is a PhD Candidate at the University of Newcastle, NSW,...
April 13, 2020
COVID-19 Nancy O’Hara, MD and Dennis Bouboulis, MD
Dr. O’Hara and her colleagues at New England Center for Health continue to host a series of zoom calls on COVID-19. The schedule will be updated weekly. Recently she sat...
April 6, 2020
Enroll in a New Study on Caregiver Experience in PANS/PANDAS
Please enroll in a study aimed to shed the light on the experiences of mothers with children suffering from...
April 6, 2020
Occupational Performance Patterns in Children with PANS
Do you have a child aged between 5 and 12 years with a PANS/ PANDAS diagnosis and currently live in either Australia, UK, USA, Canada, Ireland or New Zealand? Researchers at the University of...
April 6, 2020
Caregiver Experience in PANS/PANDAS
PARTICIPANTS NEEDED FOR RESEARCH PROJECT ON: Examining caregivers’ lived experiences since their child’s (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal...
A Success Story
Children suffering this disorder can indeed heal but early identification and correct interventions are crucial to having a successful...
Autism and PANS
My child was diagnosed at the age of 6 with severe autism. No eye contact, social skills, empathy, poor academic...
April 1, 2020
Flyer/Poster – Learn About PANS PANDAS Facts
Learn About PANS PANDAS - Facts. Available in Flyer size - 8.5x11 and Two poster...
April 1, 2020
Flyer/Poster – About PANS PANDAS
Learn About PANS PANDAS - Available as Flyer and in two poster...