August 12, 2025
Joint Rebutttal Statement to the AAP
Joint Rebuttal to the American Academy of Pediatrics Clinical Report on PANS (12/16/24)...
August 8, 2025
Mastering the Art of Swallowing Pills: A Step-by-Step Guide
Swallowing pills can be intimidating for many, especially for those with PANS PANDAS due to OCD, sensory issues, anxiety, or difficulty swallowing. The good news is that with some practice...
July 30, 2025
Nebraska PANS PANDAS Awareness
🌿 In May, during Mental Health Awareness Month, our Nebraska State Leads—Grace Troupe and Elizabeth Fandl—joined Where There’s a Will Foundation for their annual mental health awareness walk...
Serum zonulin level in autistic children and its relation to severity of symptoms a case-control study
Sonbol, H.M., Abdelmawgoud, A.S., El-kady, N.M. et al. Serum zonulin level in autistic children and its relation to severity of symptoms a case-control study. Sci Rep 15, 27802 (2025). https://doi.org/10.1038/s41598-025-11420-0
- Findings: Children with autism had significantly higher serum zonulin levels (avg. 73 ng/ml) vs. neurotypical controls (avg. 22 ng/ml).
- Correlation: Higher zonulin levels were strongly associated with greater symptom severity (r = 0.9).
- Mechanism: Zonulin regulates tight junctions in the intestinal and blood–brain barriers; elevated levels increase permeability (“leaky gut”), promoting systemic and neuroinflammation.
- Relevance to PANS/PANDAS: Similar barrier dysfunction and inflammation may contribute to symptom flares following infections or immune triggers.
June 19, 2025
Virginia PANS PANDAS Updates
Virginia PANS PANDAS Updates Virginia Alliance for PANS/PANDAS Action (VA4PA) is leading legislative efforts. Please contact them directly for more information. Their website is VA4PA and...
May 17, 2025
Mother desperate after insurance denies son’s treatment for coverage with serious brain disease
It’s one of the more common illnesses: strep throat. According to the Centers for Disease Control, strep throat is now at a 20-year high. It is a bacterial infection in your throat and tonsils,...
May 8, 2025
New York/Connecticut ChitChat Meet Up
In-Person - Danbury, CT - Thursday, June 12 - 10:00am-12:00pm...
Haylie’s Healing Journey: A Story of Strength and Resilience
The key to treatment was aggressive intervention. But finding the right doctors was a battle. Most practitioners were unaware of PANS or didn’t believe in its severity. We were lucky to get a...
April 17, 2025
PANS & Eating Disorder/Food Restrictions & Toolkits/Handouts
PANS PANDAS & Eating Disorders/Food Restrictions – Full Packet of Recent studies and Flyer. Please note that the Flyer is also available in two poster sizes...
April 16, 2025
Nutrition for PANS & PANDAS
Nutrition is vital for kids with PANS/PANDAS, conditions tied to OCD and infections like strep that disrupt eating habits, causing nutrient deficiencies and gut issues. Registered Dietitians (RDs)...