Share Your Triumphs From the Past Year!
Share Your Triumphs: Celebrating Wins in the PANS/PANDAS Journey We all know that living with PANS/PANDAS is an uphill battle—sometimes a mountain climb. But as we approach the...
TIC-TOC: PANDAS syndrome (pediatric autoimmune neuropsychiatric disorders associated with streptococcal infection) and psychiatric pathology in children and adolescents
Hilario Blasco-Fontecilla, Victor del Rio-Peña, Ping Wang, Chao Li, Marina Martin-Moratinos, Marcos Bella-Fernández, Trastorno por tics y trastorno obsesivo compulsivo: Trastornos neuropsiquiátricos pediátricos autoinmunes asociados a infecciones por estreptococos (PANDAS) y enfermedades psiquiátricas en niños y adolescentes, Psiquiatría Biológica, Volume 31, Supplement 1, 2024,100554, ISSN 1134-5934,https://doi.org/10.1016/j.psiq.2024.100554.
- Study Overview: Compared 801 children with and without ASLO positivity (Antistreptolysin O, a marker of past strep infection).
- ASLO-positive kids are 7x more likely to have tics & OCD.
- More ER visits and higher trauma/fracture rates.
- No link to ADHD or academic performance.
November 21, 2024
Texas PANS PANDAS Updates
On November 13, 2020, The Texas Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council met for the first...
November 15, 2024
Idaho family fights for and wins coverage of treatment for daughter’s rare condition | Opinion
About 90% of the day, she’s bedridden,” he continued, wiping away a tear. “When she’s in a flare, she can’t speak, she can’t walk the majority of the day. She can’t eat or consume...
Dopamine receptor autoantibody signaling in infectious sequelae differentiates movement versus neuropsychiatric disorders
Menendez CM, Zuccolo J, Swedo SE, Reim S, Richmand B, Ben-Pazi H, Kovoor A, Cunningham MW. Dopamine receptor autoantibody signaling in infectious sequelae differentiates movement versus neuropsychiatric disorders. JCI Insight. 2024 Nov 8;9(21):e164762. doi: 10.1172/jci.insight.164762. PMID: 39325550; PMCID: PMC11601707.
October 9, 2024
World PANS PANDAS Awareness Day #LightUp4PANS
Volunteers Needed: We need volunteers to reach out to their municipalities to request that they light up monuments, like the state house, bridges, monuments, etc., be lit up on October 9th,...
October 7, 2024
IOCDF Town Hall on PANS PANDAS
🌟 Join IOCDF for a Special PANS PANDAS Town Hall! 🌟 As part of PANS PANDAS Awareness Week, the IOCDF is hosting an incredible Town Hall featuring three inspiring voices:...
Sammi’s Remarkable Comeback: From Struggle to Strength!
In late November of 2023, we noticed that our daughter, Sammi, had a limp. She had fallen and said her knee hurt. The next week, she began acting very tired...
October 4, 2024
Michigan PANS PANDAS Updates
Current Legislative Action Please visit the MI PANS/PANDAS Alliance to stay updated on how you can take legislative action in Michigan. If you are a Michigan parent of a...
October 2, 2024
The Cost of Inaction –
What is the cost of not treating PANS/ PANDAS promptly & appropriately? We recently sat down with Susan Swedo, MD, to discuss a critical topic: the cost of inaction when...