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Posts by:
Gabriella True

Weaving together a partial in-school and homebound instruction
Weaving together a partial in-school and homebound instruction

Read about one family's journey of how they handled their daughter's inability to attend in-person school full time and ultimately weaving together a partial in-school and homebound instruction...

Read Story

Anxiety in PANS PANDAS
March 20, 2021
Anxiety in PANS PANDAS

Anxiety is a major symptom of PANS and PANDAS.    See more about the PANS PANDAS Diagnostic Criteria and Symptoms.   Generalized Anxiety, particularly Separation Anxiety, a hallmark...

Read More


Category:  Blog, Family Resources, Symptoms
Seeking Stories about Siblings & PANS PANDAS
March 20, 2021
Seeking Stories about Siblings & PANS PANDAS

Share your PANS PANDAS story about how siblings are affected...

Read More


Category:  Blog, Featured on Homepage
Tags:  Personal Story, Siblings
Sleep Awareness Week – PANS PANDAS
March 20, 2021
Sleep Awareness Week – PANS PANDAS

Chances are if you have PANS PANDAS, you have experienced issues with sleeping. Learn about reasons why this symptom is part of the Diagnostic Criteria.  Come learn about why Sleep...

Read More


Category:  Blog, Featured on Homepage
Tags:  Sleep Disturbances
Sleep Disturbances in PANS PANDAS
March 20, 2021
Sleep Disturbances in PANS PANDAS

Sleep disturbances are common in children with PANS and are part of the diagnostic criteria.  See more about the PANS PANDAS Diagnostic Criteria and Symptoms Some have trouble falling asleep...

Read More


Category:  Blog, Family Resources, Featured on Homepage, Symptoms
Tags:  REM, Sleep Disturbances
ADHD & PANS PANDAS
March 20, 2021
ADHD & PANS PANDAS

A new onset of ADHD-like behaviors along with other PANS symptoms is one of the possible signs someone may have PANS...

Read More


Category:  Blog, Family Resources, Featured on Homepage, Symptoms
Tags:  ADHD
Impact of the Coronavirus Pandemic on Children with PANS/PANDAS Survey from MGH
March 18, 2021
Impact of the Coronavirus Pandemic on Children with PANS/PANDAS Survey from MGH

You are being invited to participate in a research study affiliated with the Massachusetts General Hospital, called Investigating the Impact of the Coronavirus Pandemic on Children with...

Read More


Category:  Blog, Current Studies, Featured on Homepage
Illinois PANS PANDAS Updates
March 14, 2021
Illinois PANS PANDAS Updates

Three laws have been passed to help PANS/PANDAS families with insurance coverage. Named after two of the children of the advocates that drove the legislation, Charlie’s Law of 2017, was...

Read More


Category:  Legislative Resources
Tags:  Legislation
Mass General Recruiting for PANDAS and Magnetic Resonance Imaging MRI Research
March 5, 2021
Mass General Recruiting for PANDAS and Magnetic Resonance Imaging MRI Research

MGH is looking for healthy controls to complete a single MRI and some brief psychological assessments to study Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep...

Read More


Category:  Current Studies
Tags:  MRI, Neuroimaging
Recruiting – naproxen sodium treat obsessive-compulsive symptoms in patients with Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections PANDAS
March 5, 2021
Recruiting – naproxen sodium treat obsessive-compulsive symptoms in patients with Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections PANDAS

This study evaluates the efficacy of naproxen sodium treat OCD symptoms in patients with suspected or diagnosed Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections...

Read More


Category:  Blog, Current Studies
Tags:  NSAIDs
Parents Push for Legislation That Would Help Children Living With PANDAS or PANS
March 3, 2021
Parents Push for Legislation That Would Help Children Living With PANDAS or PANS

DES MOINES, Iowa – This week brings one of the first significant deadlines at the Iowa statehouse. However, for some Iowa families dealing with a rare disease, one bill could bring hope. Parents...

Read More


Category:  News
Tags:  Legislation
PANS PANDAS Documentary – My Kid is Not Crazy
March 3, 2021
PANS PANDAS Documentary – My Kid is Not Crazy

Groundbreaking, Emmy Nominated documentary on PANDAS by Tim Sorel, My My Kid Is Not Crazy: A Search for Hope in the Face of Misdiagnosis is now available for free on...

Watch Video


Category:  Blog, Featured on Homepage, Videos
Tags:  MKINC
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