July 1, 2021
Lisa Kilion – 5 PANS PANDAS Tips/Advice
Lisa Kilion – PANS Life, ASPIRE Key Volunteer Find your circle of support. As a parent of kids with PANS, find your circle, whether online or in person. You need other parents...
DIAGNOSTICS, DIFFERENTIAL DIAGNOSTICS AND TREATMENT OF PANDAS SYNDROME: DESCRIPTION OF THE CASE
DIAGNOSTICS, DIFFERENTIAL DIAGNOSTICS AND TREATMENT OF PANDAS SYNDROME: DESCRIPTION OF THE CASE. Mukhtorjonova Khusnigul Nodirbekovna, Elmurodova Zarina Aslanovna. Matkarimova Dilnoza Doniyorovna, Tashkent Pediatric Medical Institute. ISSN: 2776-0960 Volume 2, Issue 6, June 2021
The analysis of this clinical case demonstrates the existence of a group of patients with a good therapeutic response to the administration of immunoglobulins and antibiotics. The mechanisms of development and course of this condition are not fully understood and require further research.
June 29, 2021
Packet – Donate & Host a Plasma Drive Information
Join ASPIRE in donating plasma today to help minimize the shortage affecting PANS patients across the country. Donate plasma today! ASPIRE can help you set up the easiest plasma drive....
Thoughts on being a parent of a medically complex child after today
The endless advocating is always 100% worth...
June 25, 2021
Getting Started with 504 & IEP Plans
You are your child’s best advocate, and we are here to help! The 504 and IEP planning process may seem overwhelming, but these educational sections will help you navigate the...
June 25, 2021
504 Plan Basics for PANS PANDAS
Read Getting Started with 504 & IEP Plans first. Many PANS PANDAS kids will qualify for a 504 plan. A 504 plan will provide accommodations for the educational program within...
June 25, 2021
Individualized Education Plans (IEP) for PANS PANDAS
Read Getting Started with 504 & IEP Plans first. Special Education is provided through the Individualized Education Program (IEP) for a student with a qualifying disability. The primary purpose...
June 25, 2021
Writing Requests for Assessments & Services
How to Ask for an Evaluation Written Request – Put all requests and correspondence in writing. Ask for an evaluation and explain why Provide medical documentation of diagnosis and supporting...
June 25, 2021
IEP or 504 Meeting – Preparation, Participation, & Follow Up
Prepare for an IEP or 504 Planning Meeting Create a list of your child’s areas of need. Before the meeting, list your child’s struggles and deficits. Know that it is...
June 25, 2021
Prior Written Notice
Prior Written Notice (PWN) is a written explanation of why the district proposes or rejects a change to a student’s IEP. This includes if you want to challenge the district’s...
June 24, 2021
Wendy Nawara – 5 PANS PANDAS Tips/Advice
Wendy Nawara – Founding Board Member Get a pet. Pets can provide a family with a concentration other than your sickness. Assign duties and expectations of caring for the pet,...
June 23, 2021
ASPIRE Lecture on PANS PANDAS with Susan Swedo, MD & Gabriella True for Comitato Italiano Genitori Pandas
Susan Swedo, MD and Gabriella True of ASPIRE - Alliance to Solve PANS & Immune-Related Encephalopathies provide a brief overview of PANS...