
IVIG Stopped Ella’s Self-Harm
Trigger Warning: Self-Harm & Suicide The following story discusses experiences with self-harm, suicidal thoughts, and psychiatric hospitalization. If you are sensitive to these topics, please...
Trigger Warning: Self-Harm & Suicide The following story discusses experiences with self-harm, suicidal thoughts, and psychiatric hospitalization. If you are sensitive to these topics, please...
New Jersey Legislative Action is lead by Alissa Johnson. Please contact her directly to become involved in legislative advocacy in New Jersey. Alissa is Co-Founder and Advisor The Louisa...
Wu, X., Hao, J., Jiang, K. et al. Neuroinflammation and pathways that contribute to tourette syndrome. Ital J Pediatr 51, 63 (2025). https://doi.org/10.1186/s13052-025-01874-3
The deadline to make the first funnel is March 4th. Calls/emails really need to be made by Monday, March 1st as this committee generally only meets on...
Zoom - Restricted Eating ChitChat - Tuesday, April 1 - 6:30 PM CT...
Virginia PANS PANDAS Updates Virginia Alliance for PANS/PANDAS Action (VA4PA) is leading legislative efforts. Please contact them directly for more information. Their website is VA4PA and...
Homeschooling and PANS/PANDAS: Resources for Families Traditional school environments can be challenging for many families navigating PANS/PANDAS. Symptoms such as anxiety, OCD, cognitive...
For up-to-date information on Oregon’s legislative action: Make sure to follow NWPPN’s Facebook page for updates and questions. To contact NWWP directly, please email them – NWPPN’s...
Restricted eating, including Avoidant/Restrictive Food Intake Disorder (ARFID), is a common yet complex challenge for individuals with PANS/PANDAS. Families and patients often struggle to find...
The Becks paid $20,000 out-of-pocket in 2023 for Emily’s medical care, including occupational therapy, psychiatric appointments, tests, supplements and medications that insurance wouldn’t pay for...