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  • What is PANS?
    • Definition
    • Causes
    • Syndrome vs Disorder
    • Who Gets PANS/PANDAS?
    • FAQs about PANS PANDAS
    • Team Approach Needed
    • Clinical Urgency of Diagnosing & Treating
    • Caregiver Experience
  • Symptoms & Diagnosis
    • PANS PANDAS Symptoms
    • PANS PANDAS Disease Course
    • PANS PANDAS Symptom Severity
    • Diagnosing PANS and PANDAS
    • Symptom Tracking Tools
    • PANS PANDAS Appointment Preparation
    • PANS PANDAS Information for Clinicians
    • Roadblocks to a PANS PANDAS Diagnosis
  • Treating PANS
    • Treating PANS and PANDAS
    • PANS and PANDAS at School
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PANS In the News

Yale scientists propose explanation for baffling form of childhood OCD
June 16, 2020
Yale scientists propose explanation for baffling form of childhood OCD

"Yale scientists may have found a cause for the sudden onset of obsessive-compulsive disorder (OCD) in some children, they report. Pediatric autoimmune neuropsychiatric disorders, or PANDAS, were...

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Category:  News
Tags:  Antibodies, Research, Striatal Cholinergic Interneurons
Rare neuropsychiatric condition causes children’s personalities to shift overnight
May 13, 2020
Rare neuropsychiatric condition causes children’s personalities to shift overnight

Stanford University researchers have discovered subtle structural differences in the brains of children with a rare condition that seemingly causes their personalities to change overnight....

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Category:  News
Tags:  Brain Imaging
Sudden Obsessions, Tantrums: What Is PANS in Kids?
May 12, 2020
Sudden Obsessions, Tantrums: What Is PANS in Kids?

Researchers may have gained new insights into a mystifying condition that causes children's behavior to change so severely and abruptly, it can be like they woke up as a different...

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Category:  News
Tags:  Brain Imaging
PANS: A Diagnosis for My Child’s Sudden Behavior Change
March 2, 2020
PANS: A Diagnosis for My Child’s Sudden Behavior Change

We thought we treated it appropriately. We followed the doctor’s initial recommendations for treating our son’s Lyme disease. He got a little better with the antibiotics but never went back to...

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Category:  Featured on Homepage, News
Student with Autism ‘Embarrassed’ After Washington Middle School Puts His Desk in the Bathroom
September 23, 2019
Student with Autism ‘Embarrassed’ After Washington Middle School Puts His Desk in the Bathroom

“I was so shocked I just took the picture because I didn’t even believe what I was seeing,” she said of a photo she snapped that went viral on social media. “It’s not an appropriate place...

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Category:  Blog, News
Marblehead mom urges lawmakers to support PANDAS/PANS bill
July 31, 2019
Marblehead mom urges lawmakers to support PANDAS/PANS bill

One might think, because PANDAS/PANS strikes children, passing the bill would be a slam dunk, but Uttam said it’s failed twice in Massachusetts already. It has, however, passed in five other...

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Category:  Featured on Homepage, News
Tags:  Legislation, News 2019
Why it’s So Hard to Get a Diagnosis of PANS and/or PANDAS
July 28, 2019
Why it’s So Hard to Get a Diagnosis of PANS and/or PANDAS

I’ve been talking a lot recently about my experience of having Paediatric Acute-Onset Neuropsychiatric Syndrome (an illness which, despite its name, affects adults too), and how I was undiagnosed...

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Category:  News
Tags:  Adult, News 2019
I’m in someone else’s body: Insurance isn’t covering potential cure for woman with rare disorder
July 28, 2019
I’m in someone else’s body: Insurance isn’t covering potential cure for woman with rare disorder

OCONOMOWOC — Eliza Ellis should be taking her first steps into adulthood. Instead, the 19-year-old requires around-the-clock care in her Oconomowoc home. "Always thought that right after high...

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Category:  News
Tags:  News 2019
PANDAS – What nurses need to know
July 26, 2019
PANDAS – What nurses need to know

Nursing considerations Nurses must educate patients and parents to monitor for any signs and symptoms of recurring infection, specifically GAS infection, in the patient or in any of the patient's...

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Category:  Featured on Homepage, News
Tags:  News 2019, Nurses
PANDAS Is for Everyone, Though It’s Usually Missed
July 24, 2019
PANDAS Is for Everyone, Though It’s Usually Missed

What will follow will be a combination of my thoughts on the situation up-to-date; answers to many of the questions I have received over the years and some suggestions for future work. To foreshadow...

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Category:  Featured on Homepage, News
Tags:  News 2019
Lisa Rinna Says Daughter Delilah Belle’s Mental Health Issues Were Caused by a Childhood Infection
July 24, 2019
Lisa Rinna Says Daughter Delilah Belle’s Mental Health Issues Were Caused by a Childhood Infection

Lisa Rinna is opening up about her daughter’s struggles with mental health. On Monday, just three days after Delilah Belle Hamlin revealed she had been to rehab two times last year, Rinna shared...

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Category:  News
Tags:  News 2019
High cost of treating PANDAS disorder leaves families in bind
July 15, 2019
High cost of treating PANDAS disorder leaves families in bind

BOSTON -- Tiffany Uttam was facing every parent’s nightmare. Her nine-year-old son became abruptly ill, and no one could seem to help. He was suddenly anxious and paranoid, hallucinating and...

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Category:  News
Tags:  Legislation, News 2019
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Leah’s Story

Leah’s Story

In August of 2014 our daughter, Leah, was 6 years old.  We had just returned home from a month-long trip to Illinois to visit family.  When we arrived home in Arizona, she suddenly (overnight) developed a fear of vomit.

Stay connected…

Our new community has launched.  Join us by subscribing to our newsletter. It’s a great way to stay up to date about PANS/PANDAS and to see what events are available in your area.

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