Family Resources
May 8, 2025
New York/Connecticut ChitChat Meet Up
In-Person - Danbury, CT - Thursday, June 12 - 10:00am-12:00pm...
April 17, 2025
PANS & Eating Disorder/Food Restrictions & Toolkits/Handouts
PANS PANDAS & Eating Disorders/Food Restrictions – Full Packet of Recent studies and Flyer. Please note that the Flyer is also available in two poster sizes...
March 10, 2025
The Sibling Experience in PANS/PANDAS: Understanding the Challenges & Needs
Living with a sibling affected by PANS profoundly impacts well-being—fear of outbursts, limited social opportunities, and the isolation of not having the words or knowledge to explain the...
March 8, 2025
Managing Needle Fear: Practical Tips for Blood Draws & Infusions
Needle fear is real, and you’re not alone. Whether it’s a quick blood draw or a longer infusion, anxiety can make the experience stressful. For those with PANS/PANDAS, it may...
March 8, 2025
Hydration & IVIG: Why It Matters
Staying well-hydrated before, during, and after IVIG can help minimize side effects like headaches, dizziness, fatigue, and muscle cramps. Here’s how to make hydration work for you: Download...
February 25, 2025
Restricted Eating & PANS Zoom ChitChat
Zoom - Restricted Eating ChitChat - Tuesday, April 1 - 6:30 PM CT...
February 18, 2025
Homeschooling and PANS/PANDAS: Resources for Families
Homeschooling and PANS/PANDAS: Resources for Families Traditional school environments can be challenging for many families navigating PANS/PANDAS. Symptoms such as anxiety, OCD, cognitive...
February 14, 2025
Resources for Eating Restrictions in PANS/PANDAS
Restricted eating, including Avoidant/Restrictive Food Intake Disorder (ARFID), is a common yet complex challenge for individuals with PANS/PANDAS. Families and patients often struggle to find...
February 1, 2025
Louisiana Zoom ChitChat
Zoom - Louisiana ChitChat - Thursday, February 27 - 3:00 PM CT...