Family Resources
May 8, 2025
New York/Connecticut ChitChat Meet Up
In-Person - Danbury, CT - Thursday, June 12 - 10:00am-12:00pm...
April 17, 2025
PANS & Eating Disorder/Food Restrictions & Toolkits/Handouts
PANS PANDAS & Eating Disorders/Food Restrictions – Full Packet of Recent studies and Flyer. Please note that the Flyer is also available in two poster sizes...
March 10, 2025
The Sibling Experience in PANS/PANDAS: Understanding the Challenges & Needs
Living with a sibling affected by PANS profoundly impacts well-being—fear of outbursts, limited social opportunities, and the isolation of not having the words or knowledge to explain the...
March 8, 2025
Managing Needle Fear: Practical Tips for Blood Draws & Infusions
Needle fear is real, and you’re not alone. Whether it’s a quick blood draw or a longer infusion, anxiety can make the experience stressful. For those with PANS/PANDAS, it may...
March 8, 2025
Hydration & IVIG: Why It Matters
Staying well-hydrated before, during, and after IVIG can help minimize side effects like headaches, dizziness, fatigue, and muscle cramps. Here’s how to make hydration work for you: Download...
February 25, 2025
Restricted Eating & PANS Zoom ChitChat
Zoom - Restricted Eating ChitChat - Tuesday, April 1 - 6:30 PM CT...
February 18, 2025
Homeschooling and PANS/PANDAS: Resources for Families
Homeschooling and PANS/PANDAS: Resources for Families Traditional school environments can be challenging for many families navigating PANS/PANDAS. Symptoms such as anxiety, OCD, cognitive...
February 14, 2025
Resources for Eating Restrictions in PANS/PANDAS
Restricted eating, including Avoidant/Restrictive Food Intake Disorder (ARFID), is a common yet complex challenge for individuals with PANS/PANDAS. Families and patients often struggle to find...
February 1, 2025
Louisiana Zoom ChitChat
Zoom - Louisiana ChitChat - Thursday, February 27 - 3:00 PM CT...
January 17, 2025
IgNS Virtual Conference Exhibitors
We’re Exhibiting at the Patient 360 Virtual Conference! ASPIRE is excited to join the IgNS Patient 360 Virtual Conference on March 8–9, 2025! This FREE, two-day event connects patients,...