West Virginia PANS PANDAS Updates
WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric...
WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric...
Trigger Warning: Self-Harm & Suicide The following story discusses experiences with self-harm, suicidal thoughts, and psychiatric hospitalization. If you are sensitive to these topics, please...
Wu, X., Hao, J., Jiang, K. et al. Neuroinflammation and pathways that contribute to tourette syndrome. Ital J Pediatr 51, 63 (2025). https://doi.org/10.1186/s13052-025-01874-3
Read a deeper dive: Neuroinflammation and Immune Pathways in Tourette Syndrome
Zoom - Restricted Eating ChitChat - Tuesday, April 1 - 6:30 PM CT...
Homeschooling and PANS/PANDAS: Resources for Families Traditional school environments can be challenging for many families navigating PANS/PANDAS. Symptoms such as anxiety, OCD, cognitive...
Restricted eating, including Avoidant/Restrictive Food Intake Disorder (ARFID), is a common yet complex challenge for individuals with PANS/PANDAS. Families and patients often struggle to find...
The Becks paid $20,000 out-of-pocket in 2023 for Emily’s medical care, including occupational therapy, psychiatric appointments, tests, supplements and medications that insurance wouldn’t pay for...
Tang AW, Swedo SE, Pasternack M, Murphy T, et al. Eight cases of pediatric acute-onset neuropsychiatric syndrome: clinical characteristics. Developmental Neuroscience. 2025;47(4):287–302. doi:10.1159/000543969
Please read more in depth blog – When PANS and IBD Co-Occur: What This Case Series Suggests
Identifies a subgroup of children with PANS characterized by the triad of PANS symptoms, joint complaints, and family history of autoimmunity (including psoriasis).
Suggests this subgroup may be at increased risk for inflammatory bowel disease and other immune-mediated disorders.
Recommends a low threshold for evaluation of gastrointestinal inflammation using biomarkers such as hemoglobin, CRP, fecal calprotectin, and endoscopy when indicated.
Reports that PANS symptoms may improve with effective treatment of inflammatory bowel disease.
Notes high prevalence of joint complaints and autoimmune family history, suggesting shared immune mechanisms with psoriasis and arthritis.
Proposes that treatments used in inflammatory bowel disease and arthritis warrant study for potential application in PANS.
Looking for ASPIRE ChitChats? ASPIRE ChitChats are supportive, peer-to-peer meetings for parents of children with PANS and adults living with PANS. These gatherings—both online and in...
Zoom - Louisiana ChitChat - Thursday, February 27 - 3:00 PM CT...
ASPIRE to Speak at NJSSNA Spring 2025 Conference – Pearls of Wisdom for School Nurses Conference Details Friday, March 28, 2025 at 6:00pm ET – Saturday, March 29,...