Just Like Any Other Adult!
I am just like any other adult now, thanks to the IViGs and therapy. Do not get me wrong; I have struggled so much with my PANS PANDAS that I have wanted to give up many times. I have cried so hard...
July 16, 2020
ASPIRE Celebrates its first year anniversary!
What a year! Thank you for being a part of ASPIRE’s first year. We believe in the power of WE; it takes an entire community to fight for better outcomes for those affected by PANS/PANDAS....
July 6, 2020
Education Series from New England Center for Health
ASPIRE is happy to announce that New England Center for Health, lead by Dr. Nancy O’Hara (ASPIRE Professional Advisory Board Member), Dr. Lindsey Wells, and Vicki Kobliner will host zoom calls...
Two-Tier Lyme Disease Serology Test Results Can Vary According to the Specific First-Tier Test Used
Alexandra B Maulden, Aris C Garro, Fran Balamuth, Michael N Levas, Jonathan E Bennett, Desiree N Neville, John A Branda, Lise E Nigrovic, for Pedi Lyme Net, Two-Tier Lyme Disease Serology Test Results Can Vary According to the Specific First-Tier Test Used, Journal of the Pediatric Infectious Diseases Society, Volume 9, Issue 2, June 2020, Pages 128–133, https://doi.org/10.1093/jpids/piy133
Significant variations in two-tier Lyme disease test results were observed in many children, depending on the specific first-tier test utilized. When dealing with children with a strong clinical suspicion of Lyme disease and an initially negative test result, clinicians should contemplate retesting for Lyme disease.
Diagnosis Day
Diagnosis Stories
Do you remember the day your child officially got a diagnosis of PANS/PANDAS? Was it your first doctor? Was it your fifth? Were you devastated? Were you relieved to have an answer and the start of a...
June 26, 2020
Susan Swedo, MD on Autoantibody Biomarkers for Basal Ganglia Encephalitis
Dr. Swedo briefly explains the importance of this research and its results. The Frontiers article is an important replication and extension of previous work by Dr. Madeleine Cunningham and her...
June 25, 2020
Lyme Disease & Tick Borne Infections Fundamentals – Dr. O’Hara
Lyme is it Affecting My Child? You Bet Your Rash & Other Signs, Symptoms, and Treatments Nancy O’Hara, MD, MPH, FAAP, a member of the ASPIRE Professional Advisory Board, presented...
Autoantibody Biomarkers for Basal Ganglia Encephalitis in Sydenham Chorea and Pediatric Autoimmune Neuropsychiatric Disorder Associated With Streptococcal Infections
Chain Jennifer L., Alvarez Kathy, Mascaro-Blanco Adita, Reim Sean, Bentley Rebecca, Hommer Rebecca, Grant Paul, Leckman James F., Kawikova Ivana, Williams Kyle, Stoner Julie A., Swedo Susan E., Cunningham Madeleine W. Autoantibody Biomarkers for Basal Ganglia Encephalitis in Sydenham Chorea and Pediatric Autoimmune Neuropsychiatric Disorder Associated With Streptococcal Infections. Jnl Frontiers in Psychiatry. Vol.11, 2020. DOI.10.3389/fpsyt.2020.00564
June 24, 2020
Lyme Disease Basics – Dr. O’Hara
Section 1: Lyme Disease Basics Nancy O’Hara, MD, MPH, FAAP, a member of the ASPIRE Professional Advisory Board, presented on Lyme Disease, Tick-Borne Illness and Co-infections as part of the...
June 24, 2020
MSIDS & Chronic Lyme Disease – Dr. O’Hara
Section 3: MSIDS & Chronic Lyme Nancy O’Hara, MD, MPH, FAAP, a member of the ASPIRE Professional Advisory Board, presented on Lyme Disease, Tick-Borne Illness and Co-infections as part of...
June 24, 2020
Lyme Treatment – Overview of Literature Review – Dr. O’Hara
-Literature Review of Tick-borne Diseases Literature (1500-2018) -Lyme Treatment Overview from Literature Review -Adverse Reactions to Antibiotics -Herbs -Nutritional Approaches when Treating...