February 18, 2026
Center for Lyme Action Virtual Advocacy Day
Today, representing ASPIRE, I had the opportunity to join the Connecticut delegation for Legislative Day with the Center for Lyme Action. They are an incredible organization. They provide everything...
February 17, 2026
How two elementary school-aged girls became advocates for insurance reform in Nebraska
LINCOLN, Neb. (KOLN) — Violet and Belle Troupe are typical little girls. They go to elementary school, play outside on nice days and love to twirl around in their best...
February 13, 2026
A rare condition can send kids into fits of rage. Treatment could help — if insurance covers it.
by Olivia Gieger February 13, 2026, 1:12 pm VT Digger For some Vermont families, treating the immune system can be life-changing to help a psychological condition possibly triggered by strep....
February 10, 2026
Why Other Health Impairment (OHI) is the Appropriate IEP eligibility category for PANS/PANDAS
PANS/PANDAS Meets IDEA’s Definition of Other Health Impairment Students with PANS/PANDAS may experience sudden and severe symptoms that significantly disrupt school functioning across academic,...
February 9, 2026
Legislative Action: Information for Legislators Toolkit & Handouts
Legislative Action: Information for Legislators Toolkit & Handouts Download Legislative Toolkit Legislative Action: Information for Legislators Toolkit Download ASPIRE’s PANS/PANDAS Legislative...
February 9, 2026
PANS/PANDAS Legislative Recap
Start the Legislative Process Are you interested in starting the legislative process in your state? Meet with the ASPIRE Legislative Working Group (ALWG) to help you get started. Your voice...
February 9, 2026
Mandated Insurance Coverage for PANS and PANDAS
Mandated Insurance Coverage for PANS and PANDAS Providing Equal and Comparable Access to Medically Necessary Care Why Insurance Coverage Is Necessary The Cost of Inaction Is Higher Than the Cost...
February 9, 2026
Insurance Coverage Gaps and the Case for Mandates in PANS and PANDAS
Why Mandated Insurance Coverage for PANS and PANDAS Is Necessary Providing Equal and Comparable Access to Medically Necessary Care See the below for downloadable resources: Mandated Insurance...
February 9, 2026
Legislative Talking/Writing Points and Examples
General Legislative Information Legislative Recap – PANS PANDAS Legislation Nationwide How Get Started: How to talk to your state representative Look Up Your State Representative & State...
February 8, 2026
Abrupt-Onset Eating Restriction in PANS
Kapphahn C, Peet B, Gao J, Chan A, Farhadian B, Ma M, Silverman M, Tran P, Schlenk N, Thienemann M, Frankovich J. Sudden Onset Disordered Eating Behaviors and Appetite...
February 8, 2026
Neuroinflammation and Immune Pathways in Tourette Syndrome
Wu, X., Hao, J., Jiang, K. et al. Neuroinflammation and pathways that contribute to tourette syndrome. Ital J Pediatr 51, 63 (2025). https://doi.org/10.1186/s13052-025-01874-3 A 2025 narrative review...