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  • What is PANS?
    • Definition
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    • Clinical Urgency of Diagnosing & Treating
    • Caregiver Experience
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    • PANS PANDAS Information for Clinicians
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Posts by:
Gabriella True

Chicago ChitChat Meetup
May 8, 2025
Chicago ChitChat Meetup

In-Person - June 7 - 3:00 pm...

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Category:  Blog, ChitChat, Events/Projects, Family Resources, Featured on Homepage
Tags:  ChitChat
New York/Connecticut ChitChat Meet Up
May 8, 2025
New York/Connecticut ChitChat Meet Up

In-Person - Danbury, CT - Thursday, June 12 - 10:00am-12:00pm...

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Category:  Blog, ChitChat, Events/Projects, Family Resources, Featured on Homepage
Tags:  ChitChat
Haylie’s Healing Journey: A Story of Strength and Resilience
Haylie’s Healing Journey: A Story of Strength and Resilience

The key to treatment was aggressive intervention. But finding the right doctors was a battle. Most practitioners were unaware of PANS or didn’t believe in its severity. We were lucky to get a...

Read Story

Legislative Talking/Writing Points and Examples
April 22, 2025
Legislative Talking/Writing Points and Examples

  General Legislative Information How to talk to your state representative How to Get Started Find your State Representative and State Senator in your district Look Up Your Legislator! ASPIRE...

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Category:  Blog, Legislative Resources
Tags:  Legislation
Legislative Action: Information for Legislators Toolkit
April 22, 2025
Legislative Action: Information for Legislators Toolkit

  Download Toolkit Legislative Action: Information for Legislators Toolkit Download ASPIRE’s PANS/PANDAS Legislative Action: Information for Legislators Toolkit. 

This Legislative Toolkit...

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Category:  Blog, Legislative Resources, Printables & Brochures
Tags:  Awareness, Legislation, Toolkit
PANS Legislative Recap
April 22, 2025
PANS Legislative Recap

Start the Legislative Process Are you interested in starting the legislative process in your state? Meet with the ASPIRE Legislative Working Group (ALWG) to help you get started. Your voice...

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Category:  Blog, Legislative Resources
Tags:  Legislation
Legislative Talking Tips for PANS PANDAS
April 21, 2025
Legislative Talking Tips for PANS PANDAS

ASPIRE is working to support national efforts to pass legislation requiring insurance coverage for the treatment of PANS and PANDAS. By sharing your story and keeping the conversation clear,...

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Category:  Blog, Legislative Resources
Louisiana PANS PANDAS Updates
April 20, 2025
Louisiana PANS PANDAS Updates

Louisiana PANS PANDAS Action The Louisiana PANS PANDAS Action Committee (LPPA) is a newly formed group that is leading the charge for legislative change in the state to support those...

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Category:  Blog, Featured on Homepage, Legislative Resources
PANS & Eating Disorder/Food Restrictions & Toolkits/Handouts
April 17, 2025
PANS & Eating Disorder/Food Restrictions & Toolkits/Handouts

PANS PANDAS & Eating Disorders/Food Restrictions – Full Packet of Recent studies and Flyer. Please note that the Flyer is also available in two poster sizes...

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Category:  Behavioral Health, Blog, Clinicians, Family Resources, Featured on Homepage, Printables & Brochures, Symptoms
Tags:  Anorexia, ARFID, Awareness, Awareness Day, Eating Disorders, Food Restrictions, Toolkit
Nutrition for PANS & PANDAS
April 16, 2025
Nutrition for PANS & PANDAS

Nutrition is vital for kids with PANS/PANDAS, conditions tied to OCD and infections like strep that disrupt eating habits, causing nutrient deficiencies and gut issues. Registered Dietitians (RDs)...

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Category:  Additional Therapies, Blog, Clinicians, Featured on Homepage
Louisiana families fight rare condition
April 2, 2025
Louisiana families fight rare condition

PANS or PANDAS refers to what some doctors call Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. It’s an often misunderstood and misdiagnosed disease that...

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Category:  Blog, News
Tags:  Legislation
Seizures Linked to Bartonella and Babesia
March 20, 2025
Seizures Linked to Bartonella and Babesia

Imagine a child suffering from seizures, only to discover years later that the cause might be tied to a cat scratch and an insect bite. A groundbreaking case study from North Carolina State...

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Category:  Blog, Featured on Homepage, Tick-Borne Illness
Tags:  Babesia, Bartonella, Blood Brain Barrier, Tick-Borne
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