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  • What is PANS?
    • Definition
    • Causes
    • Syndrome vs Disorder
    • Who Gets PANS/PANDAS?
    • FAQs about PANS PANDAS
    • Team Approach Needed
    • Clinical Urgency of Diagnosing & Treating
    • Caregiver Experience
  • Symptoms & Diagnosis
    • PANS PANDAS Symptoms
    • PANS PANDAS Disease Course
    • PANS PANDAS Symptom Severity
    • Diagnosing PANS and PANDAS
    • Symptom Tracking Tools
    • PANS PANDAS Appointment Preparation
    • PANS PANDAS Information for Clinicians
    • Roadblocks to a PANS PANDAS Diagnosis
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PANS In the News

Urgent call for 2024 AAP Red Book® to update strep testing recommendations.
May 24, 2024
Urgent call for 2024 AAP Red Book® to update strep testing recommendations.

ASPIRE and other PANS/PANDAS organizations are joining the PANDAS Physician Network in their efforts to call to the Academy of Pediatrics to update the Red Book’s® recently published...

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Category:  Blog, Clinicians, Featured on Homepage, News
Richlands mom looks to spread awareness about neuropsychiatric disorder after both children diagnosed
May 23, 2024
Richlands mom looks to spread awareness about neuropsychiatric disorder after both children diagnosed

An Onslow County woman is looking to spread awareness about a neuropsychiatric disorder both her children have been diagnosed with, one she said is often misdiagnosed by...

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Category:  Blog, News
Tags:  News 2024
Mother desperate after insurance denies son’s treatment for coverage with serious brain disease
May 17, 2024
Mother desperate after insurance denies son’s treatment for coverage with serious brain disease

KCTV5 By Sharon Chen Published: May. 17, 2024 at 9:51 AM EDT|Updated: May. 22, 2024 at 3:48 PM EDT “IVIG is intravenous immunoglobulins or immune cells that go in and...

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Category:  Blog, Featured on Homepage, News
Many mental-health conditions have bodily triggers:
April 25, 2024
Many mental-health conditions have bodily triggers:

The evolving evidence of the impact of inflammatory disorders and metabolic conditions, like PANS PANDAS, on mental health conditions is discussed in the latest issue of The Economist....

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Category:  Blog, Featured on Homepage, News
Georgia doesn’t treat this devastating diagnosis in kids – How families are navigating care
April 22, 2024
Georgia doesn’t treat this devastating diagnosis in kids – How families are navigating care

Three Georgia mothers say their daughters went from happy, playful girls to children struggling with anxiety and rage...

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Category:  Blog, Featured on Homepage, News
Controversy around PANS/PANDAS: Filmaker’s take
April 22, 2024
Controversy around PANS/PANDAS: Filmaker’s take

Watch...

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Category:  Blog, News
When Infection Sparks Obsession: PANDAS and PANS
April 3, 2024
When Infection Sparks Obsession: PANDAS and PANS

When Angela Tang’s teenage son came down with a baffling illness, few households could have been better equipped to deal with it. The family lives in a wealthy Los Angeles suburb. Both parents are...

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Category:  Blog, News
PANDAS Family granted insurance coverage after 4th attempt
March 29, 2024
PANDAS Family granted insurance coverage after 4th attempt

NASHVILLE, Tenn. (WSMV) - After three denials of insurance coverage of a misunderstood disease, a Mt. Juliet family just learned the good news: BlueCross BlueShield has agreed to three months of...

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Category:  Blog, News
‘He’s falling apart’
March 21, 2024
‘He’s falling apart’

Family enters final fight for son’s ‘life-saving’ treatment WSMV4 by Amanda Hara. Published: Mar. 21, 2024 at 5:35 PM EDT Another story about the cruel bureaucracy of insurance. A child...

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Category:  Blog, Featured on Homepage, News
The Intersection of Mental Health and the Immune System – Exploring new avenues of diagnosis and treatment in mental health care.
February 29, 2024
The Intersection of Mental Health and the Immune System – Exploring new avenues of diagnosis and treatment in mental health care.

The Intersection of Mental Health and the Immune System – Exploring new avenues of diagnosis and treatment in mental health care. Psychology Today By: Sheilah M. Gauch   Sheilah hits...

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Category:  Blog, News
Lowenthal Brings Back Pans/Pandas Bill After Governor Vetoes It
February 22, 2024
Lowenthal Brings Back Pans/Pandas Bill After Governor Vetoes It

"Long Beach’s state assembly representative, Josh Lowenthal, earlier this month introduced AB 2105 in Sacramento. It would provide health insurance coverage for an inflammatory brain disorder that...

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Category:  Blog, News
‘My brain is making me do this’: Family fights for insurance coverage of brain disease caused by strep
February 10, 2024
‘My brain is making me do this’: Family fights for insurance coverage of brain disease caused by strep

WSMV 4 By Lauren Lowrey Published: Jan. 24, 2024 at 6:37 PM EST|Updated: Jan. 24, 2024 at 7:44 PM EST   NASHVILLE, Tenn. (WSMV) – A little-understood disease could be...

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Category:  Blog, News
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Leah’s Story

Leah’s Story

In August of 2014 our daughter, Leah, was 6 years old.  We had just returned home from a month-long trip to Illinois to visit family.  When we arrived home in Arizona, she suddenly (overnight) developed a fear of vomit.

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