Nutrition is vital for kids with PANS/PANDAS, conditions tied to OCD and infections like strep that disrupt eating habits, causing nutrient deficiencies and gut issues. Registered Dietitians (RDs)...
Imagine a child suffering from seizures, only to discover years later that the cause might be tied to a cat scratch and an insect bite. A groundbreaking case study from North Carolina State...
Students with PANS/PANDAS have complex cognitive, behavioral, physical & neurological symptoms that affect their school performance. The school's multidisciplinary team benefits from an awareness of...
Living with a sibling affected by PANS profoundly impacts well-being—fear of outbursts, limited social opportunities, and the isolation of not having the words or knowledge to explain the...
Supporting Students with PANS, PANDAS, and Basal Ganglia Encephalitis: Children with PANS, PANDAS, and basal ganglia encephalitis often require specific school accommodations to support their...
Needle fear is real, and you’re not alone. Whether it’s a quick blood draw or a longer infusion, anxiety can make the experience stressful. For those with PANS/PANDAS, it may...
Staying well-hydrated before, during, and after IVIG can help minimize side effects like headaches, dizziness, fatigue, and muscle cramps. Here’s how to make hydration work for you: Download...
The bill is going to be a huge step forward, but Emily‘s mom April says it’s not a cure the bill does not mandate insurance coverage for the most common and effective...
WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric...
Trigger Warning: Self-Harm & Suicide The following story discusses experiences with self-harm, suicidal thoughts, and psychiatric hospitalization. If you are sensitive to these topics, please...
Zoom - Restricted Eating ChitChat - Tuesday, April 1 - 6:30 PM CT...
Homeschooling and PANS/PANDAS: Resources for Families Traditional school environments can be challenging for many families navigating PANS/PANDAS. Symptoms such as anxiety, OCD, cognitive...