In terms of neuropsychiatric symptoms, there are case reports in the medical literature, showing kids who have a PANS presentation who received immunomodulatory treatment, steroids, psychiatric...
Chan, A., Karpel, H., Spartz, E. et al. Hypoferritinemia and iron deficiency in youth with pediatric acute-onset neuropsychiatric syndrome. Pediatr Res 89, 1477–1484 (2021). https://doi.org/10.1038/s41390-020-1103-3
Conclusion: Hypoferritinemia and iron deficiency appear to be more common in PANS patients. More research is needed to confirm and understand this association.
What a year! Thank you for being a part of ASPIRE’s first year. We believe in the power of WE; it takes an entire community to fight for better outcomes for those affected by PANS/PANDAS....
ASPIRE is happy to announce that New England Center for Health, lead by Dr. Nancy O’Hara (ASPIRE Professional Advisory Board Member), Dr. Lindsey Wells, and Vicki Kobliner will host zoom calls...
Alexandra B Maulden, Aris C Garro, Fran Balamuth, Michael N Levas, Jonathan E Bennett, Desiree N Neville, John A Branda, Lise E Nigrovic, for Pedi Lyme Net, Two-Tier Lyme Disease Serology Test Results Can Vary According to the Specific First-Tier Test Used, Journal of the Pediatric Infectious Diseases Society, Volume 9, Issue 2, June 2020, Pages 128–133, https://doi.org/10.1093/jpids/piy133
Significant variations in two-tier Lyme disease test results were observed in many children, depending on the specific first-tier test utilized. When dealing with children with a strong clinical suspicion of Lyme disease and an initially negative test result, clinicians should contemplate retesting for Lyme disease.
Diagnosis Stories
Do you remember the day your child officially got a diagnosis of PANS/PANDAS? Was it your first doctor? Was it your fifth? Were you devastated? Were you relieved to have an answer and the start of a...
Dr. Swedo briefly explains the importance of this research and its results. The Frontiers article is an important replication and extension of previous work by Dr. Madeleine Cunningham and her...
Lyme is it Affecting My Child? You Bet Your Rash & Other Signs, Symptoms, and Treatments Nancy O’Hara, MD, MPH, FAAP, a member of the ASPIRE Professional Advisory Board, presented...
Chain Jennifer L., Alvarez Kathy, Mascaro-Blanco Adita, Reim Sean, Bentley Rebecca, Hommer Rebecca, Grant Paul, Leckman James F., Kawikova Ivana, Williams Kyle, Stoner Julie A., Swedo Susan E., Cunningham Madeleine W. Autoantibody Biomarkers for Basal Ganglia Encephalitis in Sydenham Chorea and Pediatric Autoimmune Neuropsychiatric Disorder Associated With Streptococcal Infections. Jnl Frontiers in Psychiatry. Vol.11, 2020. DOI.10.3389/fpsyt.2020.00564
We Are Brave - A PANS PANDAS Patient Story
I guess my advice for a PANDAS family would to always be there for your sick child. To always tell them that they are brave. Because we are. There may only be 1 in 200 of us, but we are the bravest...
A child's perspective on her journey with PANDAS
My name is Ella and I was diagnosed with PANDAS at age 13, now 15. Before PANDAS I was a four-sport athlete (basketball being my favorite), I loved hanging out with friends and family, I was doing...
ASPIRE sits down with Julie Cox, LCSW, to discuss why therapeutic strategies can be beneficial to PANS PANDAS parents and caregivers, how not to pathologize everything, and ways to accept that the...