August 12, 2025
Joint Rebutttal Statement to the AAP
Joint Rebuttal to the American Academy of Pediatrics Clinical Report on PANS (12/16/24)...
Blog
August 8, 2025
Mastering the Art of Swallowing Pills: A Step-by-Step Guide
Swallowing pills can be intimidating for many, especially for those with PANS PANDAS due to OCD, sensory issues, anxiety, or difficulty swallowing. The good news is that with some practice...
July 30, 2025
Nebraska PANS PANDAS Awareness
🌿 In May, during Mental Health Awareness Month, our Nebraska State Leads—Grace Troupe and Elizabeth Fandl—joined Where There’s a Will Foundation for their annual mental health awareness walk...
June 19, 2025
Virginia PANS PANDAS Updates
Virginia PANS PANDAS Updates Virginia Alliance for PANS/PANDAS Action (VA4PA) is leading legislative efforts. Please contact them directly for more information. Their website is VA4PA and...
May 8, 2025
New York/Connecticut ChitChat Meet Up
In-Person - Danbury, CT - Thursday, June 12 - 10:00am-12:00pm...
Haylie’s Healing Journey: A Story of Strength and Resilience
The key to treatment was aggressive intervention. But finding the right doctors was a battle. Most practitioners were unaware of PANS or didn’t believe in its severity. We were lucky to get a...
April 17, 2025
PANS & Eating Disorder/Food Restrictions & Toolkits/Handouts
PANS PANDAS & Eating Disorders/Food Restrictions – Full Packet of Recent studies and Flyer. Please note that the Flyer is also available in two poster sizes...
April 16, 2025
Nutrition for PANS & PANDAS
Nutrition is vital for kids with PANS/PANDAS, conditions tied to OCD and infections like strep that disrupt eating habits, causing nutrient deficiencies and gut issues. Registered Dietitians (RDs)...
April 2, 2025
Louisiana families fight rare condition
PANS or PANDAS refers to what some doctors call Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. It’s an often misunderstood and misdiagnosed disease that...
March 20, 2025
Seizures Linked to Bartonella and Babesia
Imagine a child suffering from seizures, only to discover years later that the cause might be tied to a cat scratch and an insect bite. A groundbreaking case study from North Carolina State...