PANS PANDAS Rocks
PANS Rocks! Come Join the Fun! Paint Rocks and Spread Awareness! ASPIRE spoke with Michelle Dowd, who has started a fun project for kids with PANS/PANDAS that also helps spread...
Benjamin’s Family
It is clear that not enough parents and professionals are educated about PANDAS. My pediatrician apologized to me for not diagnosing my son properly. She said that the children in her practice that have PANDAS could not function at all and were curled up in a ball and could not go to school. She said she learned a lot that the symptoms can vary in severity, and not all PANDAS kids have the same symptoms.
Benjamin’s PANS PANDAS Story – (not autism)
It is clear that not enough parents and professionals are educated about PANDAS. My pediatrician apologized to me for not diagnosing my son properly. She said that the children in her practice that...
March 13, 2020
Delivery of IEP Services During Corona
Many students with PANS/PANDAS have IEPs. During this period, many schools a being closed for extended periods completely while others are closing temporarily to make plans for remote teaching. The...
March 7, 2020
Enroll in UCONN Study – Families’ Experiences with PANS
University of Connecticut Parents/Caregivers Wanted for a Research Study on Families’ Experiences with PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome) We will be conducting interviews with...
March 3, 2020
ASPIRE & Vitalant Plasma Drive – Nationwide!
Vitalant & ASPIRE Community Plasma Drive March 15 – May 15 – locations throughout the country What to know more about Plasma Donation? ASPIRE has created an easy to understand...
March 2, 2020
PANS: A Diagnosis for My Child’s Sudden Behavior Change
We thought we treated it appropriately. We followed the doctor’s initial recommendations for treating our son’s Lyme disease. He got a little better with the antibiotics but never went back to...
Immuno-moodulin: A new anxiogenic factor produced by Annexin-A1 transgenic autoimmune-prone T cells
GiuseppaPiras, LorenzaRattazzi
Brain, Behavior, and Immunity, 29 February 2020
Patients with obsessive compulsive disorder (OCD) have increased levels of Immuno-moodulin (Imood), a protein in their lymphocytes, a type of immune cell.
Anxious mice returned to normal in a couple of days after being given an antibody that blocked Imood. Twenty-three people with OCD and twenty healthy people without OCD were tested; Imood expression was about six times higher in those with OCD. Additional research indicates the same protein, Immod, is elevated in ADHD.
February 29, 2020
Rare Disease and Equity
Whether you think PANS/PANDAS is a Rare Disease or actually just rarely diagnosed, it is a day to educate people about PANS/PANDAS. The main objective of Rare Disease Day is to raise awareness...
February 28, 2020
Honor Your Doctor on Doctors’ Day – March 30!
Join ASPIRE in recognizing a doctor who inspires you, who has helped your family heal, who has gone that extra mile, who has listened to you. We are working on a special "thank you" for all of our...
February 28, 2020
CABDA to Merge with ASPIRE!
ASPIRE is thrilled to announce that Children’s Autoimmune Brain Disorder Association (CABDA) will merge with us. We look forward to working together with a shared vision to achieve our mission....
February 24, 2020
Thank you to ASPIRE Donor Katie Emmet
Thank you to ASPIRE donor and supporter, Katie Emmet for opening your amazing space for us to have our Board Meeting and Board and Committee...