"Last week, in part one of our two-part look into PANDAS/PANS, teens Gino Vitelli and Abby Gauch, along with their mothers, told their stories of living with the auto-immune disease. This week, in...
‘He woke up an altogether different child’: Massachusetts families speak on living with PANDAS/PANS Wicked Local. By James Kukstis. Sep 24, 2020 Part one of our look into PANDAS/PANS Read...
Study To Compare The Effect of Panzyga Versus Placebo in Patients With Pediatric Acute-onset Neuropsychiatric Syndrome. This will be a double blind placebo study of IVIG for...
Elisha Bidwell, LMFT discusses her Parent Regulation Cheat Sheet and how PANS PANDAS caregivers can utilize it. Click to download a printable copy of the Parent Regulation Cheat Sheet Gabriella:...
"Education is critical to know what is out there. If we can identify cases of Lyme disease early, we can treat them right away. Then we decrease the likelihood of an infection leading to chronic...
According to the CDC, Lyme disease is the number one vector-borne illness in the United States. The CDC believes their typical numbers are underestimating the number of Lyme disease cases in any...
I often combine antibiotics with natural products, including different antimicrobial herbs and different tinctures. I look at the evidence we have; we're in an evidence-based medical culture, yet we...
Do I have patients with Lyme triggered PANS? Do I have patients whose Lyme does not trigger PANS symptoms but does exacerbate the severity of pre-existing conditions or make it more difficult to...
In terms of neuropsychiatric symptoms, there are case reports in the medical literature, showing kids who have a PANS presentation who received immunomodulatory treatment, steroids, psychiatric...
Chan, A., Karpel, H., Spartz, E. et al. Hypoferritinemia and iron deficiency in youth with pediatric acute-onset neuropsychiatric syndrome. Pediatr Res 89, 1477–1484 (2021). https://doi.org/10.1038/s41390-020-1103-3
Conclusion: Hypoferritinemia and iron deficiency appear to be more common in PANS patients. More research is needed to confirm and understand this association.
I am just like any other adult now, thanks to the IViGs and therapy. Do not get me wrong; I have struggled so much with my PANS PANDAS that I have wanted to give up many times. I have cried so hard...
What a year! Thank you for being a part of ASPIRE’s first year. We believe in the power of WE; it takes an entire community to fight for better outcomes for those affected by PANS/PANDAS....