Live Your Life, Not Your Diagnosis
Dedication to PANS/PANDAS Awareness and Advocacy with Advocate Gabriella True “It’s not always about overcoming, it’s about living.” Gabriella True Link to Podcast Episode on...
TACA Take Action Conference Series – April 2023
TACA’s Take Action Conference Series is an entirely new offering for TACA families. This virtual month-long opportunity will include live lectures from experts, take-action workshops,...
New Autism Rates Published – 1 in 36
CDC’s Autism Numbers – 1 in 36 The newly published estimated Autism Prevalence rates by the Center for Disease Control and Prevention (CDC) report that 1 in 36 children...
Iowa PANS PANDAS Updates
The deadline to make the first funnel is March 4th. Calls/emails really need to be made by Monday, March 1st as this committee generally only meets on...
Neuropsychiatric Testing Provides Objective Insight into Beneficial Effects of IVIG in Patients with PANS
Dr. Daines and the team at the CPAE Center of Excellence (University of Arizona) recently conducted a poster presentation at the AAAAI. The study demonstrates the beneficial effects of IVIG treatments for PANS patients. 11 out of 12 PANS patients showed “significant” improvement following IVIG treatment.
The significant presence of baseline hypogammaglobulinemia in children with PANS emphasizes the presumed role of immune dysfunction in disease pathogenesis, especially given the known connection between immunodeficiency and autoimmunity (8,9). Thus, immunomodulatory interventions are presumed to have a crucial therapeutic role.
It did not assess the benefit of IVIG for OCD or Restricted Eating as the other psychiatric, and neuropsychological manifestations can sometimes overshadow OCD (1-3). Since objective post-treatment evaluations are scarce and challenging given disease complexity (5-7), the study used standardized neuropsychiatric testing to assess how (IVIG) treatment impacts cognitive function in children with PANS.
The research, as presented in the poster session, will be submitted as a journal article.