Complementary therapies may help patients remain functional during a flare. Between flares, complementary treatments may help a patient regain skills lost during exacerbations. The entire family often needs to employ supportive therapies for themselves. Parents and siblings often need therapy to help cope with stress and develop strategies to help their child or sibling.
Occupational Performance Fluctuates With PANS Disease State Newby MJ, Lane SJ, Haracz K, et al. Occupational performance patterns in children with paediatric acute-onset neuropsychiatric syndrome....
Swallowing pills can be intimidating for many, especially for those with PANS PANDAS due to OCD, sensory issues, anxiety, or difficulty swallowing. The good news is that with some practice...
Nutrition is vital for kids with PANS/PANDAS, conditions tied to OCD and infections like strep that disrupt eating habits, causing nutrient deficiencies and gut issues. Registered Dietitians (RDs)...
Living with a sibling affected by PANS profoundly impacts well-being—fear of outbursts, limited social opportunities, and the isolation of not having the words or knowledge to explain the...
Needle fear is real, and you’re not alone. Whether it’s a quick blood draw or a longer infusion, anxiety can make the experience stressful. For those with PANS/PANDAS, it may...
Staying well-hydrated before, during, and after IVIG can help minimize side effects like headaches, dizziness, fatigue, and muscle cramps. Here’s how to make hydration work for you: Download...
Trigger Warning: Self-Harm & Suicide The following story discusses experiences with self-harm, suicidal thoughts, and psychiatric hospitalization. If you are sensitive to these topics, please...
We’re Exhibiting at the Patient 360 Virtual Conference! ASPIRE is excited to join the IgNS Patient 360 Virtual Conference on March 8–9, 2025! This FREE, two-day event connects patients,...
Certain dental procedures can increase the risk of bacteremia (the presence of viable bacteria in the circulating blood).¹ Thus, the American Heart Association’s 2007 guidelines recommend...
Speaker: Julie Cox, MSW, LCSW, PLLC Webinar: Helping PANS Families Move From Grief to Empowerment Register to View Recorded Webinar: Watch on Demand Please register even if you will not attend...
Speaker: Vicki Kobliner, MS, RDN Webinar: Nutritional Interventions in PANS/PANDAS Watch Recorded Webinar: Register to View Materials from Webinar PDF File: Phytonutrient Spectrum Checklist...
Speaker: Roseann Capanna-Hodge, Ed.D., LPC, BCN, LLC. Webinar: Calming the PANS/PANDAS Brain with Neurofeedback Date/Time: Tuesday, June 7 – 12:00 pm EST Register view webinar: Watch Today! In...