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  • What is PANS?
    • Definition
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    • Who Gets PANS/PANDAS?
    • FAQs about PANS PANDAS
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    • Clinical Urgency of Diagnosing & Treating
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  • Symptoms & Diagnosis
    • PANS PANDAS Symptoms
    • PANS PANDAS Disease Course
    • PANS PANDAS Symptom Severity
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    • PANS PANDAS Information for Clinicians
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PANS In the News

Girl, 9, Becomes Different Person Overnight, Mom Fights For Rare Diagnosis
December 14, 2025
Girl, 9, Becomes Different Person Overnight, Mom Fights For Rare Diagnosis

Lacy was an outgoing, fun nine-year-old. Then, one night, everything changed. She became a shell of herself. Her mother, Crystal, 30, from Illinois, told Newsweek she can only describe last year...

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Category:  Blog, Featured on Homepage, News
Families share stories of sudden behavioral changes in children after strep infections
October 31, 2025
Families share stories of sudden behavioral changes in children after strep infections

Parents say their children seemingly change overnight, displaying dangerous behaviors that often mimic symptoms of obsessive-compulsive disorder or schizophrenia. However, getting a proper diagnosis...

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Category:  Blog, News
MLK Bridge “Lights Up 4 PANS”
October 10, 2025
MLK Bridge “Lights Up 4 PANS”

  WFFT-TV 55 News By: David Tilmans, Oct 9, 2025 Watch Newscast and Read Article FORT WAYNE, Ind. (WFFT) – – The Dr. Martin Luther King, Jr. Memorial Bridge is...

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Category:  Blog, Featured on Homepage, News
Tags:  Awareness Day, LightUP4PANS
Millennium Carillon to light up in green for PANS PANDAS Awareness Day
October 8, 2025
Millennium Carillon to light up in green for PANS PANDAS Awareness Day

Daily Herald – Suburban Chicago’s News Source October 06, 2025 On Thursday, Oct. 9, the Millennium Carillon in Naperville will light up green in honor of World PANS/PANDAS Awareness Day,...

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Category:  Blog, Events/Projects, Featured on Homepage, News
Tags:  Awareness Day
When Overnight Everything Changed: A Parent’s Perspective on PANS/PANDAS
When Overnight Everything Changed: A Parent’s Perspective on PANS/PANDAS

Sometimes what looks like an eating disorder is really a symptom of PANS/PANDAS. Too many families miss the real cause and go without the help their kids need. That’s why we’re so glad @F.E.A.S.T...

Read Story

August 25, 2025
Strep throat is a common childhood illness, but in a few children this bacteria infection can lead to alarming, lasting changes in behaviour. Scientists are now starting to unravel how it affects the brain.

Strep throat is a common childhood illness, but in a few children this bacteria infection can lead to alarming, lasting changes in behaviour. Scientists are now starting to unravel how it affects the...

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Category:  Blog, News
Joint Rebutttal Statement to the AAP
August 12, 2025
Joint Rebutttal Statement to the AAP

Joint Rebuttal to the American Academy of Pediatrics Clinical Report on PANS (12/16/24)...

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Category:  Blog, Clinicians, Family Resources, Featured on Homepage, Legislative Resources, News
Tags:  AAP
Mother desperate after insurance denies son’s treatment for coverage with serious brain disease
May 17, 2025
Mother desperate after insurance denies son’s treatment for coverage with serious brain disease

It’s one of the more common illnesses: strep throat. According to the Centers for Disease Control, strep throat is now at a 20-year high. It is a bacterial infection in your throat and tonsils,...

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Category:  Blog, News
Louisiana families fight rare condition
April 2, 2025
Louisiana families fight rare condition

PANS or PANDAS refers to what some doctors call Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. It’s an often misunderstood and misdiagnosed disease that...

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Category:  Blog, News
Tags:  Legislation
How a Georgia House bill could create options in treating a devastating pediatric diagnosis
March 6, 2025
How a Georgia House bill could create options in treating a devastating pediatric diagnosis

The bill is going to be a huge step forward, but Emily‘s mom April says it’s not a cure the bill does not mandate insurance coverage for the most common and effective...

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Category:  Blog, Featured on Homepage, News
Health Insurers Deny 850 Million Claims a Year
February 12, 2025
Health Insurers Deny 850 Million Claims a Year

The Becks paid $20,000 out-of-pocket in 2023 for Emily’s medical care, including occupational therapy, psychiatric appointments, tests, supplements and medications that insurance wouldn’t pay for...

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Category:  Blog, Featured on Homepage, News
November 15, 2024
Idaho family fights for and wins coverage of treatment for daughter’s rare condition | Opinion

About 90% of the day, she’s bedridden,” he continued, wiping away a tear. “When she’s in a flare, she can’t speak, she can’t walk the majority of the day. She can’t eat or consume...

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Category:  Blog, News
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Leah’s Story

Leah’s Story

In August of 2014 our daughter, Leah, was 6 years old.  We had just returned home from a month-long trip to Illinois to visit family.  When we arrived home in Arizona, she suddenly (overnight) developed a fear of vomit.

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