October 10, 2025
MLK Bridge “Lights Up 4 PANS”
WFFT-TV 55 News By: David Tilmans, Oct 9, 2025 Watch Newscast and Read Article FORT WAYNE, Ind. (WFFT) – – The Dr. Martin Luther King, Jr. Memorial Bridge is...
October 8, 2025
Millennium Carillon to light up in green for PANS PANDAS Awareness Day
Daily Herald – Suburban Chicago’s News Source October 06, 2025 On Thursday, Oct. 9, the Millennium Carillon in Naperville will light up green in honor of World PANS/PANDAS Awareness Day,...
When Overnight Everything Changed: A Parent’s Perspective on PANS/PANDAS
Sometimes what looks like an eating disorder is really a symptom of PANS/PANDAS. Too many families miss the real cause and go without the help their kids need. That’s why we’re so glad @F.E.A.S.T...
August 12, 2025
Joint Rebutttal Statement to the AAP
Joint Rebuttal to the American Academy of Pediatrics Clinical Report on PANS (12/16/24)...
April 2, 2025
Louisiana families fight rare condition
PANS or PANDAS refers to what some doctors call Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. It’s an often misunderstood and misdiagnosed disease that...
March 6, 2025
How a Georgia House bill could create options in treating a devastating pediatric diagnosis
The bill is going to be a huge step forward, but Emily‘s mom April says it’s not a cure the bill does not mandate insurance coverage for the most common and effective...
February 12, 2025
Health Insurers Deny 850 Million Claims a Year
The Becks paid $20,000 out-of-pocket in 2023 for Emily’s medical care, including occupational therapy, psychiatric appointments, tests, supplements and medications that insurance wouldn’t pay for...
November 15, 2024
Idaho family fights for and wins coverage of treatment for daughter’s rare condition | Opinion
About 90% of the day, she’s bedridden,” he continued, wiping away a tear. “When she’s in a flare, she can’t speak, she can’t walk the majority of the day. She can’t eat or consume...
September 19, 2024
The Inflammation Factor
Therapists need to be aware of when inflammatory disorders can masquerade as psychiatric conditions Therapy Today – September, 2024 – Lucy McDonald is a counselor at the Children’s...
September 11, 2024
A fresh understanding of OCD is opening routes to new treatments
When my daughter was young, she washed her hands a lot. We might have poked what we thought was gentle fun at her, saying she was “a little bit OCD”. Later, she began to disclose “bad...
August 14, 2024
The inflammation connection: Kids with PANS at high risk for arthritis
The disease is typically as awful as it is sudden: Over a few days, children develop severe anxiety and intense obsessive-compulsive behaviors. They barely sleep and may stop eating. Their schoolwork...
June 20, 2024
A totally new kid’: Parents push for coverage of controversial IV treatment for brain condition
Legislation in the Michigan House would require insurers to cover the treatment for children who suffer from a brain condition believed to be caused by...
In August of 2014 our daughter, Leah, was 6 years old. We had just returned home from a month-long trip to Illinois to visit family. When we arrived home in Arizona, she suddenly (overnight) developed a fear of vomit.