Autism One Virtual Summit
Autism One Virtual Summit
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Occupational Therapy OT and PANS PANDAS webinar
Michelle Newby is running another free webinar for Occupational Therapists and Occupational Therapy Assistants wanting to learn more about PANS PANDAS and how they can best support their client's unique needs. The workshop will cover:
PANS PANDAS Grand Rounds at OHSU with Kiki Chang, MD
Psychiatry Grand Rounds "Pediatric Acute Onset Neuropsychiatric Syndrome (PANS): Recognition and Treatment of an Often Overlooked Syndrome in Children" OHSU Department of Psychiatry is hosting Kiki Chang, M.D. who will present on PANS PANDAS. This event is sponsored by NWPPN. For details on the event and how to watch the Grand Rounds, please read here. […]
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PANS PANDAS Awareness Day
Join ASPIRE on PANS PANDAS Awareness Day on October 9, 2020, to spread awareness and help educate the public about this devastating condition. Change Your Facebook Profile Picture Frame! PANS PANDAS Awareness Day is October 9th. ASPIRE has four frames for you to choose from so pick one and wear it with pride. Wear […]
PANDAS Italia – Management of the psychological & behavioral aspects of PANS in the family and school context
PANDAS Italia's Second Meeting on "Management of the psychological and behavioral aspects of PANS in the family and school context" Friday, October 9, 2020 at 9 AM – 1 PM UTC "L'incontro si propone, col tempo, di aiutare i genitori nella gestione dei bambini affetti da PANDAS e PANS (BGE) nell'ambito familiare e scolastico, data […]
Massachusetts Advocacy Day
Mass advocates and NEPANS bring a Facebook Live advocacy session on PANS PANDAS Awareness day. For more information, see the attached flyer. .
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Virtual Voices with IOCDF
To strengthen our voices and unite together, we need your help! Register today to participate in Virtual Voices for Mental Health to your community. Virtual Voices for Mental Health: An Online Day of Action on Oct. 12-13 International OCD Foundation & ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies #VirtualVoices4MH
Webinar with Kyle Williams, MD, PhD at MGH- New findings in PANDAS/PANS research
new findings in PANDAS/PANS research
Truth About Lyme Conference
For more details see:
Rare Disease Day 2021
ASPIRE is proud to be included as a friend of NORD's Rare Disease Day efforts.
Eating Disorder Awareness Day
One of the primary symptoms of PANS is Severe Eating Restriction. Over 50% of PANS patients will have non-life threatening eating restrictions but more severe than picky eating. While 17% will experience such severe eating restrictions that it has become life-threatening due to extreme and rapid weight loss of at least 10%-15% of their body weight.
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ASPIRE Participates in Rare Across America
ASPIRE joined several Congressional meetings organized by Rare Disease Legislative Advocates (RDLA) on March 3rd and 4th, 2021 to talk about PANS PANDAS as well as issues that affect Rare Disease. Senators and Representatives were asked to support important rare disease FY 2022 appropriat