One of the primary symptoms of PANS is Severe Eating Restriction. Over 50% of PANS patients will have non-life threatening eating restrictions but more severe than picky eating. While 17% will experience such severe eating restrictions that it has become life-threatening due to extreme and rapid weight loss of at least 10%-15% of their body weight.
ASPIRE joined several Congressional meetings organized by Rare Disease Legislative Advocates (RDLA) on March 3rd and 4th, 2021 to talk about PANS PANDAS as well as issues that affect Rare Disease. Senators and Representatives were asked to support important rare disease FY 2022 appropriat
Session Abstract: This presentation provides an overview of how PANS/PANDAS impacts classroom functioning across physical, socio-emotional, academic, and behavioral domains. Presenters will describe strategies and initiatives to support students with these PANS/PANDAS at the classroom, school, and district levels.
Learn more about PANS PANDAS and Sleep Issues
Today is National Doctor's Day!
Pick up the phone and send an email to the PANS PANDAS doctor or doctors who have made a difference in your life!
Learn about Occupational Therapy for PANS PANDAS
Come learn about PANS PANDAS and Autism.
PANS PANDAS affects the whole family. See two articles Therapy for Siblings of Children with PANS PANDAS Sibling Support in PANS PANDAS and look for Sibling stories in our PANS family story section.
WNDA 2021 Annual Conference
ASPIRE volunteers are the heart of our organization, aiming to improve the lives of those affected by PANS PANDAS.
Identifying PANS and PANDAS: How to Start Your Family’s Healing Journey Brought to you by Center for Fully Functional Health As a parent, it can be a challenge when you don’t feel well. But when your child is struggling, it turns your whole world upside-down. If your child has multiple symptoms that are seemingly unrelated […]
think we can all agree that we are living through difficult times… I know how much harder things have been since 2020 – and still now in 2021 – and even more so if you’re a parent whose kids are struggling with attention, learning, emotions, or behavior.
Our friend, colleague, and children’s mental health expert Dr. Roseann is hosting a free event called The Get Unstuck Parenting Summit. You’ll hear from trusted experts and from parents just like you, like ASPIRE’s president, Gabriella True, who have found answers to help improve their child’s behavior. Register for free right here!
ASPIRE Presenting on PANS PANDAS
Children brought to behavioral health clinics with a sudden onset of changes in behavior and/or mood are often misdiagnosed and mistreated because clinicians don’t know the signs and symptoms of pediatric acute-onset neuropsychiatric disorders (PANS) or the related condition, pediatric autoimmune neuropsychiatric disorders associated with strep (PANDAS) – devastating, but treatable disorders. Clinical service providers need to have accurate knowledge of this disorder so they can provide correct referrals, treatment interventions and support. A clip from the award-winning documentary, “My Child is Not Crazy” will illustrate the impact of PANS/PANDAS on children and their families.
Learn more about the relationship between Lyme, Tick-Borne Infections and PANS
Advanced Practice Nurses are an integral part of PANS PANDAS patient care.
Celebrate Teachers Day Learn more about PANS PANDAS at School.
ASPIRE has created this worksheet for your child to do to highlight What Makes You Special!
http://aspire.care/featured/childrens-mental-health-awareness-day/
Learn more about School Nurses for PANS PANDAS
The Inflammatory Brain Disorders Conference features nationally and internationally renowned experts skilled in diagnostic and therapeutic approaches who will present a diverse range of emerging clinical and research challenges, insights, and advances in the field of inflammatory brain disorders. The conference will be held live virtually. All registrants will receive a recording of the entire conference.
PANS/PANDAS: When Strep Causes OCD, Anxiety and More, on their facebook page
They will discuss how infectious diseases can trigger a wide range of neuropsychiatric responses. While researchers are only beginning to study and understand these syndromes, tonight you will hear the latest information on causes and treatments. Questions regarding the webinar should be directed to the contact at the link below.
Featuring ASPIRE Board Members: Susan Swedo, MD and Gabriella True
They will clarify the most frequent questions that Italian parents from Comitato Italiano Genitori ask about diagnosis and treatment.
Dr. Craig Shimasaki of Moleculera Labs will be giving a presentation at the Second Annual Southern California Rare Disorders Symposium sponsored by UC Irvine on Friday, March 19th.
Please join doctors from the Mass General PANDAS clinic as they present updates on various aspects of clinical care in PANS/PANDAS. They will also present new research on how to treat and diagnose these conditions.
Register now for our live webinar: The Role of the Adaptive Immunity & Genetic Risk Factors in Vascular & Neuronal Dysfunction in Post-Infectious Autoimmune Encephalitis
Learn more about Eating Disorders and how they can relate to PANS PANDAS Read Article. ASPIRE is parterning with World Disease Disorders Organization. World Eating Disorders Action Day is a grassroots movement designed for and by people affected by an eating disorder, their families, and the medical and health professionals who support them. Uniting activists across […]
The conference is for parents and professionals and is completely online so available world-wide. It will be recorded and available for viewing for ticket holders for a period of time after the conference.
June 7th is Tourette Syndrome Awareness Day. Come learn about PANS PANDAS and the overlap with Tourette Disorder. You can have a dual diagnosis! Read More about Tics and Motor Movements in PANS PANDAS.
Become a PANS PANDAS Champion. Get involved in PANS PANDAS Awareness Day. See's ASPIRE's PANS PANDAS Awareness Day information with easy steps to take and materials for you to use.
