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Rare Disease Day

Whether you think PANS/PANDAS is a Rare Disease or actually just rarely diagnosed, it is a day to educate people about PANS/PANDAS. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

May is Mental Health Month

May is Mental Health Month
During May, ASPIRE joins the national movement to raise awareness about mental health. Each year we fight stigma, provide support, educate the public and advocate for policies that support people with PANS/PANDAS and their families. Many Mental health issues, like PANS/PANDAS/Autoimmune Encephalitis, have a biological basis and should be treated like other medical illness not only as a mental health issue. Mental Health is Medical Health. Learn More about PANS/PANDAS at http://aspire.care/

Teacher Appreciation Day

Thank a Teacher Day is today, May 5th Today is a day for honoring teachers and recognizing the lasting contributions they make to our lives. Whether in a classroom, in a home school, or in a virtual classroom we thank teachers for bringing excitement about learning into our lives. So today, we ask YOU to […]

Autism One Virtual Summit

Autism One Virtual Summit
Sign up to watch lectures via live feed for free or pay a flat fee to watch all lectures at any time.

Occupational Therapy OT and PANS PANDAS webinar

Michelle Newby is running another free webinar for Occupational Therapists and Occupational Therapy Assistants wanting to learn more about PANS PANDAS and how they can best support their client's unique needs. The workshop will cover:

PANS PANDAS Grand Rounds at OHSU with Kiki Chang, MD

Psychiatry Grand Rounds "Pediatric Acute Onset Neuropsychiatric Syndrome (PANS): Recognition and Treatment of an Often Overlooked Syndrome in Children" OHSU Department of Psychiatry is hosting Kiki Chang, M.D. who will present on PANS PANDAS. This event is sponsored by NWPPN. For details on the event and how to watch the Grand Rounds, please read here. […]

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PANS PANDAS Awareness Day

Join ASPIRE on PANS PANDAS Awareness Day on October 9, 2020, to spread awareness and help educate the public about this devastating condition.    Change Your Facebook Profile Picture Frame! PANS PANDAS Awareness Day is October 9th. ASPIRE has four frames for you to choose from so pick one and wear it with pride. Wear […]

Massachusetts Advocacy Day

Mass advocates and NEPANS bring a Facebook Live advocacy session on PANS PANDAS Awareness day.  For more information, see the attached flyer. .

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Virtual Voices with IOCDF

To strengthen our voices and unite together, we need your help! Register today to participate in Virtual Voices for Mental Health to your community. Virtual Voices for Mental Health: An Online Day of Action on Oct. 12-13 International OCD Foundation & ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies #VirtualVoices4MH

Rare Disease Day 2021

ASPIRE is proud to be included as a friend of NORD's Rare Disease Day efforts.

Eating Disorder Awareness Day

One of the primary symptoms of PANS is Severe Eating Restriction. Over 50% of PANS patients will have non-life threatening eating restrictions but more severe than picky eating. While 17% will experience such severe eating restrictions that it has become life-threatening due to extreme and rapid weight loss of at least 10%-15% of their body weight. 

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ASPIRE Participates in Rare Across America

ASPIRE joined several Congressional meetings organized by Rare Disease Legislative Advocates (RDLA) on March 3rd and 4th, 2021 to talk about PANS PANDAS as well as issues that affect Rare Disease. Senators and Representatives were asked to support important rare disease FY 2022 appropriat

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CEC National Convention Panel on PANS PANDAS

Session Abstract: This presentation provides an overview of how PANS/PANDAS impacts classroom functioning across physical, socio-emotional, academic, and behavioral domains. Presenters will describe strategies and initiatives to support students with these PANS/PANDAS at the classroom, school, and district levels.