PANDAS Italia's Second Meeting on "Management of the psychological and behavioral aspects of PANS in the family and school context" Friday, October 9, 2020 at 9 AM – 1 PM […]
Mass advocates and NEPANS bring a Facebook Live advocacy session on PANS PANDAS Awareness day. For more information, see the attached flyer. .
To strengthen our voices and unite together, we need your help! Register today to participate in Virtual Voices for Mental Health to your community. Virtual Voices for Mental Health: An Online Day of Action on Oct. 12-13 International OCD Foundation & ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies #VirtualVoices4MH
new findings in PANDAS/PANS research
For more details see:
ASPIRE is proud to be included as a friend of NORD's Rare Disease Day efforts.
One of the primary symptoms of PANS is Severe Eating Restriction. Over 50% of PANS patients will have non-life threatening eating restrictions but more severe than picky eating. While 17% will experience such severe eating restrictions that it has become life-threatening due to extreme and rapid weight loss of at least 10%-15% of their body weight.
ASPIRE joined several Congressional meetings organized by Rare Disease Legislative Advocates (RDLA) on March 3rd and 4th, 2021 to talk about PANS PANDAS as well as issues that affect Rare Disease. Senators and Representatives were asked to support important rare disease FY 2022 appropriat
Session Abstract: This presentation provides an overview of how PANS/PANDAS impacts classroom functioning across physical, socio-emotional, academic, and behavioral domains. Presenters will describe strategies and initiatives to support students with these PANS/PANDAS at the classroom, school, and district levels.
Learn more about PANS PANDAS and Sleep Issues
Today is National Doctor's Day!
Pick up the phone and send an email to the PANS PANDAS doctor or doctors who have made a difference in your life!
Learn about Occupational Therapy for PANS PANDAS
