A letter to my 14 year old self
Our friend gave ASPIRE permission to share this letter to her 14-year-old self. Many of us know how it feels to be too affected by PANS/PANDAS/BGE to go to school....
Personal Stories
My name is Lexi and this is my PANS story…
Lexi’s story exemplifies the absolute devastation patients and families go through as a result of being misdiagnosed for too long. In our article on Clinical Urgency of Diagnosing and Treating,...
From IVIG to PEX to Rituximab to Helminths to treat PANS
Before We have four kids; two have PANS. Charlie’s came on like a freight train in the summer of 2010 at age 5. Maddie’s PANDAS was a slower unfolding until...
A PANS PANDAS Recovery Poem
8 years ago, I was diagnosed with Pandas 7 years ago, I wobbled on my feet 6 years ago, I moved forward with my life 5 years ago, I realized...
2021 PANS PANDAS Triumphs!
Thank you to everyone who took a moment to celebrate the successes of the past year so our community can carry hope into 2022! ...
Hold Onto Hope!
At the age of 8, my life, as it was, was taken in a week of sickness because of the flu. I woke up with hallucinations, severe OCD, and ADHD-like...
Being a teen with PANDAS and chronically ill is hard!
I think that people often forget about chronically ill teenagers. We aren't adults yet, but we also aren’t little kids anymore. We're in the middle of everything and everyone. We can understand...
Severe Eating Disorder Due to PANS PANDAS
Our family and B have gone through so much since December 2018. It has been completely devastating emotionally, mentally, physically, and financially. At the time, there didn’t seem to be...
Healing from PANDAS is possible
Carrie knows firsthand how much PANS PANDAS can take a toll on parents and the family. She shares her story to let other parents know there is light at the...
Using an Integrative Approach to Heal from PANS PANDAS
I asked my son if I could share his story with ASPIRE; he could help people. For the first time in a long time, he smiled and said he felt...
On Reaching Out for Support at the Start of PANS PANDAS Symptoms
I have had the privilege of getting to know Cici a little bit this year, and we had chatted about her sharing part of her PANS PANDAS BGE experience with...
Thoughts on being a parent of a medically complex child after today
The endless advocating is always 100% worth...