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Thank You to ASPIRE’s Volunteers!
April 14, 2021
Thank You to ASPIRE’s Volunteers!

ASPIRE Celebrates Volunteer Appreciation Week! ASPIRE volunteers are the heart of our organization, aiming to improve the lives of those affected by PANS PANDAS. Our different backgrounds and...

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Clinical guidance for diagnosis and management of suspected Pediatric Acute‐onset Neuropsychiatric Syndrome in the Nordic countries
Pfeiffer HCV, Wickstrom R, Skov L, Sørensen CB, Sandvig I, Gjone IH, Ygberg S, de Visscher C, Idring Nordstrom S, Herner LB, Hesselmark E, Hedderly T, Lim M, Debes NM. Clinical guidance for diagnosis and management of suspected Pediatric Acute-onset Neuropsychiatric Syndrome in the Nordic countries. Acta Paediatr. 2021 Apr 13. doi: 10.1111/apa.15875. Epub ahead of print. PMID: 33848371.

“Consensus was achieved in the collaboration on work‐up and treatment of patients with paediatric acute‐onset neuropsychiatric syndrome, which we hope will improve and homogenise patient care and enable future collaborative research in the field.”

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Can PANDAS Swear? A Curious Case of Coprolalia in a 15 Year Old Girl Presenting to the Emergency Department

El Tawil, Chady. (2022). Can PANDAS Swear? A Curious Case of Coprolalia in a 15 Year Old Girl presenting to the Emergency Department. 10.52544/2642-7184(X)XXXX.

Abstract: Pediatric autoimmune neuropsychiatric disorders associated with Streptococcal infections, or PANDAS, is a diagnosis of children with an acute and fast onset of obsessions, compulsions or tics succeeding a Group A beta-hemolytic streptococcal infection. Coprolalia is a form of tics where the patient involuntarily says obscene and inappropriate words. We report a case of a 15-year old girl with a history of suspected PANDAS presenting to the emergency department with recurrent coprolalia without signs of a streptococcus infection. PANDAS and other neuropsychiatric syndromes can have different acute presentations. The ED physicians should be familiar with such disorders and presentations