July 11, 2019
Contact ASPIRE – Get Support
Whether you are just starting to explore the possibility of a PANS/PANDAS diagnosis or you have weathered several flares, we ASPIRE to support the needs of families and patients living with...
July 11, 2019
PANDAS Physicians Network (PPN)
PPN maintains industry standard guidelines for diagnostics and therapeutics, fosters continuous education and communication with the multidisciplinary medical community and sponsors research for...
July 11, 2019
National Institute of Mental Health (NIMH)
Section on Behavioral Pediatrics (SBP) at the NIMH has information on PANS/PANDAS. Sue Swedo, MD, former Chief of the SBP at the NIMH, discovered that OCD, tics and other symptoms occurred after a...
July 11, 2019
Stanford PANS Clinic
The Stanford PANS Clinic was established in 2012 to build a comprehensive program with the goal of orchestrating groundbreaking research while providing tailored care for patients and families....
July 11, 2019
Children’s Post Infectious Autoimmune Encephalopathy (CPAE) Center of Excellence
CPAE was founded in 2017 in collaboration with The University of Arizona and Banner-University Medicine in collaboration with the National Institute of Mental Health (NIMH). CPAE was the first center...
July 11, 2019
Other Multidisciplinary PANS PANDAS Clinics
A number of universities have started multidisciplinary clinics since 2018. These centers are improving access to care and advancing high-quality research. Massachusetts General Hospita University of...
July 9, 2019
A Child’s Introduction to Understanding PANDAS
A Child's Introduction to Understanding PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococci) is a book aimed at helping parents explain to children this complex...
July 9, 2019
Shadow Syndromes: Shining a Light on PANS and Other Inflammation Based Illnesses Plaguing Today’s Youth
his book is about one family’s journey with PANS (Pediatric Auto-Immune Neuro-Psychiatric Syndrome). PANS is an illness that is conservatively believed to affect more than 160,000 children in the...
July 9, 2019
Infectious Madness: The Surprising Science of How We “Catch” Mental Illness
What causes mental illness? We've long blamed stress, trauma, and brain-chemistry imbalances. But a new theory is quietly achieving critical mass. In INFECTIOUS MADNESS, award-winning science writer...
July 9, 2019
Explosive Child, The: A New Approach For Understanding And Parenting Easily Frustrated, Chronically Inflexible Children
A groundbreaking approach to understanding and parenting children who frequently exhibit severe fits of temper and other intractable behaviors, from a distinguished clinician and pioneer in this...
July 2, 2019
PANDAS on Beacon Hill
Parents push for coverage, awareness of rare syndrome. Local families grappling with a rare and elusive syndrome will make the case for greater acknowledgement and support at the State House...