April 6, 2020
Enroll in a New Study on Caregiver Experience in PANS/PANDAS
Please enroll in a study aimed to shed the light on the experiences of mothers with children suffering from...
Posts found in:
Caregivers
The Burden of Caring for a Child or Adolescent With Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS): An Observational Longitudinal Study
Frankovich J, Leibold CM, Farmer C, Sainani K, Kamalani G, Farhadian B, Willett T, Park JM, Sidell D, J
Clin Psychiatry-2018
Conclusions: PANS caregivers suffer high caregiver burden. Neuropsychiatric disease severity predicts increased caregiver burden. Caregiver burden tends to decrease over time in a group of patients undergoing clinical treatment at a specialty PANS clinic. This decrease could be independent of clinical treatment.
Psychometric Evaluation of the Caregiver Burden Inventory in Children and Adolescents With PANS
Farmer C, Thienemann M, Leibold C, Kamalani G, Sauls B, Frankovich J.
J Pediatr Psycho-2018
PDF
Parents of patients with PANS experience high caregiver burden. The CBI may be confidently used to assess caregiver burden in this population.