ChitChat Meetings

ASPIRE PANS PANDAS ChitChat support group

 

ASPIRE ChitChats are online/in-person supportive meetings for parents of kids with PANS and adults with PANS. Grab a seat, talk about your situation, get a hug, listen, and support others in the group. Join us and remember that you are never alone; we have a fantastic community and want you to be a part of it! ChitChats are not professional-led support meetings providing professional therapy. We can’t provide direct medical or legal advice.ChitChat leaders or participants are not working in a professional capacity.  

Learn more About ASPIRE ChitChats – FAQs and Rules

Register for ChitChat Group Meetings Below

Learn More About ASPIRE ChitChats – FAQs and Rules

Disclaimer

The Alliance to Solve PANS and Related Encephalopathies (ASPIRE) (“Site Owner” or “ASPIRE”) presents the information on its website as a service to Internet users. Any information provided at ASPIRE presentations, meetings, in print, on our website, or on our blog or social media outlets such as Facebook, Twitter, Instagram, Pinterest, or elsewhere is provided for informational purposes only and should not be construed as medical or legal advice. ASPIRE does not endorse specific programs, schools, treatments, diets, therapies, supplements/medications/brands, or the practices/protocols/theories of any individual/group or any other professional service/service provider, including, but not limited to legal, accounting, financial/financial planning/investing, or insurance recovery. Caregivers and patients must make their own decisions concerning any treatment, therapy, or provider. ASPIRE recommends that caregivers and patients consult with an experienced doctor or other medical professionals before commencing medical treatments for their children or themselves and consult with any other professional service provider before retaining their services. While the information on this site is about legal, medical, biomedical, educational, therapeutic, financial, and other issues, it is not professional advice. The information comes from a variety of sources and is not independently verified by ASPIRE. Moreover, due to the rapidly changing nature of information relating to PANS/PANDAS and Related Encephalopathies, ASPIRE makes no warranty or guarantee concerning the accuracy or reliability of any of the content at this site or at other sites to which we link. Transmission and use of the information herein is not intended to create, and its receipt does not constitute an attorney-client relationship or any other professional-patient / client between ASPIRE and the user. No user should act or refrain from acting on the basis of any information contained herein without seeking appropriate advice regarding their individual facts and circumstances in the relevant field (legal, medical, financial, etc.).

We aspire to support.

Learn about other families whose lives have been affected by PANS/PANDAS — and be inspired to share your own.

Share Your Story

Everything changed at 4

Everything changed at 4

  We wish nothing but healing wishes for Stori. Stori’s mom shared her story with us on the day of PANS PANDAS Awareness Action Week, when we shared many stories. […]

Just Like Any Other Adult!

Just Like Any Other Adult!

I am just like any other adult now, thanks to the IViGs and therapy. Do not get me wrong; I have struggled so much with my PANS PANDAS that I have wanted to give up many times. I have cried so hard at my symptoms and feel defeated. But I do not want to focus on the negative because the positive is so much better. I want my journey to encourage people, not scare them, and I strongly feel that the good outweighs the bad in my life. I have so much to be happy about, and I always tell myself, “We can do anything!”

Finding the Right Fit at School for PANS PANDAS

Finding the Right Fit at School for PANS PANDAS

I think the biggest thing you can do for your PANDAS kid is never to give up on them!! Find what works for them and always advocate for their health and education. When someone tells you they cant accommodate your child, make them listen or find someone else who will!! Evan has come such a long way and is a happy, funny 10-year-old. We still have occasional flares, and he still needs support emotionally at times, but he knows we are there to help him!

A Long Slow Road to PANS PANDAS Recovery

A Long Slow Road to PANS PANDAS Recovery

Around 4th grade, Sylvie was at a friend’s house, and I received a call that she wanted to come home. She was scared as she had seen something upsetting on TV; turns out it was a cat that had fallen from a roof and broken its leg. It was a little strange that she had such a strong reaction, and afterward, she was withdrawn. Soon after, Sylvie came home from school and said she could no longer eat because she was afraid of choking and dying. She loved food and, prior to this, ate with gusto. We struggled and cajoled her into eating; the whole family got involved, and after about two weeks of extremely slow eating and chewing, she got back to somewhat normal.