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  • What is PANS?
    • Definition
    • Causes
    • Syndrome vs Disorder
    • Who Gets PANS/PANDAS?
    • FAQs about PANS PANDAS
    • Team Approach Needed
    • Clinical Urgency of Diagnosing & Treating
    • Caregiver Experience
  • Symptoms & Diagnosis
    • PANS PANDAS Symptoms
    • PANS PANDAS Disease Course
    • PANS PANDAS Symptom Severity
    • Diagnosing PANS and PANDAS
    • Symptom Tracking Tools
    • PANS PANDAS Appointment Preparation
    • PANS PANDAS Information for Clinicians
    • Roadblocks to a PANS PANDAS Diagnosis
  • Treating PANS
    • Treating PANS and PANDAS
    • PANS and PANDAS at School
    • Medications
    • Behavioral Health
    • Additional Therapies
    • Find a Provider
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    • PANS PANDAS Brochures & Handouts
    • ASPIRE PANS PANDAS Webinars
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PANS In the News

Autoimmune Encephalopathy/ PANS Flares and the Link to Seasonal Allergies
May 7, 2021
Autoimmune Encephalopathy/ PANS Flares and the Link to Seasonal Allergies

April 8, 2019. Somer Delsignore “Many children with PANS/ Autoimmune Encephalopathy who seem to flare despite having a good treatment plan perhaps forget the inflammation of a seasonal allergy....

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Category:  Blog, News
‘PANS’ – The little-known syndrome going undiagnosed in Australian children
May 4, 2021
‘PANS’ – The little-known syndrome going undiagnosed in Australian children

9 News Australia. By Emily McPherson. May 4, 2021 Read Article “It’s a really common and there is a very big story that if you have the wrong kind of...

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Category:  News
Childhood Post-Infectious Autoimmune Encephalopathy Clinic at U Arkansas
April 1, 2021
Childhood Post-Infectious Autoimmune Encephalopathy Clinic at U Arkansas

“The University of Arkansas for Medical Sciences-Arkansas Children’s Hospital (UAMS-ACH) Childhood Post-Infectious Autoimmune Encephalopathy (CPAE) clinic specializes in diagnosis and...

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Category:  Blog, News
A Boy, His Brain, and a Decades-Long Medical Controversy
March 25, 2021
A Boy, His Brain, and a Decades-Long Medical Controversy

Timothy was 10 years old when his personality changed overnight. A concussion during a family ski trip in December 2016 left him unsteady on his feet, but that was just the first sign something was...

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Category:  Blog, News
Parents Push for Legislation That Would Help Children Living With PANDAS or PANS
March 3, 2021
Parents Push for Legislation That Would Help Children Living With PANDAS or PANS

DES MOINES, Iowa – This week brings one of the first significant deadlines at the Iowa statehouse. However, for some Iowa families dealing with a rare disease, one bill could bring hope. Parents...

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Category:  News
Tags:  Legislation
Kyle Williams, MD PhD: Recent Breakthroughs in PANDAS Research
February 10, 2021
Kyle Williams, MD PhD: Recent Breakthroughs in PANDAS Research

"One of the most important goals of PANDAS research is to improve diagnostic accuracy. Currently we rely upon clinical evaluation of symptoms to make the diagnosis of PANDAS; ideally we would be able...

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Category:  News
Tags:  Research
The Truth About Lyme Conference
January 26, 2021
The Truth About Lyme Conference

Register today for The Truth About Lyme online conference broadcasting on February 6 – 10 hosted by Dr. Tom Moorcroft. Speaking will be two ASPIRE Professional Advisory Board Members Nancy...

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Category:  Blog, Featured on Homepage, News, Tick-Borne Illness
Anu French, MD – Professional Advisory Board Highlight
December 28, 2020
Anu French, MD – Professional Advisory Board Highlight

"The goal of this project is to challenge the narrative about who in this country is on the front lines of the fight against COVID 19 by honoring women of color physicians with portraits reflecting...

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Category:  Blog, Featured on Homepage, News
Tags:  COVID19, PAB
$2.4 Million to Build Out Biorepository
December 18, 2020
$2.4 Million to Build Out Biorepository

Tara and Dave Dollinger recently donated $2.4 million to assist the efforts of Frankovich and collaborating scientists, who are searching for answers to better understand the triggers and disease...

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Category:  Blog, Featured on Homepage, News
7-year-old explains living with PANS
December 16, 2020
7-year-old explains living with PANS

7-year-old explains living with PANS, new Smackover Elementary sensory room helps kids like him cope SMACKOVER, Ark. (KTVE/KARD) — Our senses combined can help give us a better view of...

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Category:  Blog, Featured on Homepage, News
PANS PANDAS: A mystery illness and a plea for help
December 13, 2020
PANS PANDAS: A mystery illness and a plea for help

“The essence of what makes up my daughter was gone. She was a different person. And we didn't know what was going on,” said Tara...

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Category:  Blog, Featured on Homepage, News
Study: Bartonella Infection Associated With Psychiatric Symptoms and Skin Lesions
December 9, 2020
Study: Bartonella Infection Associated With Psychiatric Symptoms and Skin Lesions

"Bartonella bacteria are increasingly recognized as an emerging infectious disease threat. A new study by North Carolina State University researchers has found additional instances of Bartonella...

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Category:  Blog, Featured on Homepage, News
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Leah’s Story

Leah’s Story

In August of 2014 our daughter, Leah, was 6 years old.  We had just returned home from a month-long trip to Illinois to visit family.  When we arrived home in Arizona, she suddenly (overnight) developed a fear of vomit.

Stay connected…

Our new community has launched.  Join us by subscribing to our newsletter. It’s a great way to stay up to date about PANS/PANDAS and to see what events are available in your area.

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