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  • What is PANS?
    • Definition
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    • Syndrome vs Disorder
    • Who Gets PANS/PANDAS?
    • FAQs about PANS PANDAS
    • Team Approach Needed
    • Clinical Urgency of Diagnosing & Treating
    • Caregiver Experience
  • Symptoms & Diagnosis
    • PANS PANDAS Symptoms
    • PANS PANDAS Disease Course
    • PANS PANDAS Symptom Severity
    • Diagnosing PANS and PANDAS
    • Symptom Tracking Tools
    • PANS PANDAS Appointment Preparation
    • PANS PANDAS Information for Clinicians
    • Roadblocks to a PANS PANDAS Diagnosis
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PANS In the News

COVID-19: Annabel is fighting virus symptoms months after testing negative for the disease
August 4, 2021
COVID-19: Annabel is fighting virus symptoms months after testing negative for the disease

Following COVID-19, a 9-year-old girl developed neuropsychiatric symptoms, including OCD-like behaviors. Her mother reports other symptoms included: "Extreme anxiety, resulting in frequent panic...

Read More


Category:  News
Tags:  COVID19
Advocacy Spotlight: Gabriella True
July 17, 2021
Advocacy Spotlight: Gabriella True

This is the first of a series of interviews with influential PANDAS/PANS and Lyme advocates. How do they DO it? How do they contend with their own challenges as well...

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Category:  Blog, Featured on Homepage, News
PANDAS  – What is it and How Can It Be Treated – Giggle Magazine
June 11, 2021
PANDAS – What is it and How Can It Be Treated – Giggle Magazine

Giggle Magazine article on PANDAS.   Page 23-24 of their June/July 2021 issue is available online....

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Category:  Blog, Featured on Homepage, News
Tips for Accurate Mental Health Diagnosis: Four Unusual Clues to Consider
June 1, 2021
Tips for Accurate Mental Health Diagnosis: Four Unusual Clues to Consider

Part 3: Navigating medical conditions masquerading as primary psychopathology Anthony D. Smith LMHC, Posted May 29, 2021 “Perhaps some of the most interesting cases of medical conditions...

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Category:  Blog, News
Mother of 10-year-old battling tick-borne disease: ‘his brain is on fire’
May 7, 2021
Mother of 10-year-old battling tick-borne disease: ‘his brain is on fire’

“In Finn’s case, Lyme Bartonella Mycoplasma have been identified as triggers. The disease leads to rage, exhaustion, panic attacks, among other symptoms,” Dean said. “It’s been just...

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Category:  Blog, News
Autoimmune Encephalopathy/ PANS Flares and the Link to Seasonal Allergies
May 7, 2021
Autoimmune Encephalopathy/ PANS Flares and the Link to Seasonal Allergies

April 8, 2019. Somer Delsignore “Many children with PANS/ Autoimmune Encephalopathy who seem to flare despite having a good treatment plan perhaps forget the inflammation of a seasonal allergy....

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Category:  Blog, News
‘PANS’ – The little-known syndrome going undiagnosed in Australian children
May 4, 2021
‘PANS’ – The little-known syndrome going undiagnosed in Australian children

9 News Australia. By Emily McPherson. May 4, 2021 Read Article “It’s a really common and there is a very big story that if you have the wrong kind of...

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Category:  News
Childhood Post-Infectious Autoimmune Encephalopathy Clinic at U Arkansas
April 1, 2021
Childhood Post-Infectious Autoimmune Encephalopathy Clinic at U Arkansas

“The University of Arkansas for Medical Sciences-Arkansas Children’s Hospital (UAMS-ACH) Childhood Post-Infectious Autoimmune Encephalopathy (CPAE) clinic specializes in diagnosis and...

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Category:  Blog, News
A Boy, His Brain, and a Decades-Long Medical Controversy
March 25, 2021
A Boy, His Brain, and a Decades-Long Medical Controversy

Timothy was 10 years old when his personality changed overnight. A concussion during a family ski trip in December 2016 left him unsteady on his feet, but that was just the first sign something was...

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Category:  Blog, News
Parents Push for Legislation That Would Help Children Living With PANDAS or PANS
March 3, 2021
Parents Push for Legislation That Would Help Children Living With PANDAS or PANS

DES MOINES, Iowa – This week brings one of the first significant deadlines at the Iowa statehouse. However, for some Iowa families dealing with a rare disease, one bill could bring hope. Parents...

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Category:  News
Tags:  Legislation
Kyle Williams, MD PhD: Recent Breakthroughs in PANDAS Research
February 10, 2021
Kyle Williams, MD PhD: Recent Breakthroughs in PANDAS Research

"One of the most important goals of PANDAS research is to improve diagnostic accuracy. Currently we rely upon clinical evaluation of symptoms to make the diagnosis of PANDAS; ideally we would be able...

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Category:  News
Tags:  Research
The Truth About Lyme Conference
January 26, 2021
The Truth About Lyme Conference

Register today for The Truth About Lyme online conference broadcasting on February 6 – 10 hosted by Dr. Tom Moorcroft. Speaking will be two ASPIRE Professional Advisory Board Members Nancy...

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Category:  Blog, Featured on Homepage, News, Tick-Borne Illness
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Leah’s Story

Leah’s Story

In August of 2014 our daughter, Leah, was 6 years old.  We had just returned home from a month-long trip to Illinois to visit family.  When we arrived home in Arizona, she suddenly (overnight) developed a fear of vomit.

Stay connected…

Our new community has launched.  Join us by subscribing to our newsletter. It’s a great way to stay up to date about PANS/PANDAS and to see what events are available in your area.

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