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  • What is PANS?
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  • What is PANS?
    • Definition
    • Causes
    • Syndrome vs Disorder
    • Who Gets PANS/PANDAS?
    • FAQs about PANS PANDAS
    • Team Approach Needed
    • Clinical Urgency of Diagnosing & Treating
    • Caregiver Experience
  • Symptoms & Diagnosis
    • PANS PANDAS Symptoms
    • PANS PANDAS Disease Course
    • PANS PANDAS Symptom Severity
    • Diagnosing PANS and PANDAS
    • Symptom Tracking Tools
    • PANS PANDAS Appointment Preparation
    • PANS PANDAS Information for Clinicians
    • Roadblocks to a PANS PANDAS Diagnosis
  • Treating PANS
    • Treating PANS and PANDAS
    • PANS and PANDAS at School
    • Medications
    • Behavioral Health
    • Additional Therapies
    • Find a Provider
  • Resources
    • PANS PANDAS Brochures & Handouts
    • ASPIRE PANS PANDAS Webinars
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PANS In the News

South Shore families turn struggle to diagnose, treat rare disease into statewide movement
January 4, 2022
South Shore families turn struggle to diagnose, treat rare disease into statewide movement

BOSTON – “Our kids were super-social, playdates all the time, very independent. … They were leading this happy-go-lucky life surrounded by friends,” said Kim Panton, of Duxbury, recalling the...

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Category:  Blog, News
Pediatric OCD May Respond to Timely IG Therapy
November 16, 2021
Pediatric OCD May Respond to Timely IG Therapy

"Timely treatment with IV immunoglobulin (IVIG) therapy can help children who develop obsessive-compulsive disorder (OCD) and other severe psychiatric or neurologic symptoms in the aftermath of...

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Category:  Featured on Homepage, News
Long COVID in Kids: The New Mono?
August 24, 2021
Long COVID in Kids: The New Mono?

While PANDAS is the result of a bacteria, and Long COVID, a virus, these pathogens share the capacity to cross the blood brain barrier, and attack the brain, affecting everything from mood, nerves...

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Category:  Blog, Featured on Homepage, News
Tags:  COVID19
COVID-19: Annabel is fighting virus symptoms months after testing negative for the disease
August 4, 2021
COVID-19: Annabel is fighting virus symptoms months after testing negative for the disease

Following COVID-19, a 9-year-old girl developed neuropsychiatric symptoms, including OCD-like behaviors. Her mother reports other symptoms included: "Extreme anxiety, resulting in frequent panic...

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Category:  News
Tags:  COVID19
Advocacy Spotlight: Gabriella True
July 17, 2021
Advocacy Spotlight: Gabriella True

This is the first of a series of interviews with influential PANDAS/PANS and Lyme advocates. How do they DO it? How do they contend with their own challenges as well...

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Category:  Blog, Featured on Homepage, News
PANDAS  – What is it and How Can It Be Treated – Giggle Magazine
June 11, 2021
PANDAS – What is it and How Can It Be Treated – Giggle Magazine

Giggle Magazine article on PANDAS.   Page 23-24 of their June/July 2021 issue is available online....

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Category:  Blog, Featured on Homepage, News
Tips for Accurate Mental Health Diagnosis: Four Unusual Clues to Consider
June 1, 2021
Tips for Accurate Mental Health Diagnosis: Four Unusual Clues to Consider

Part 3: Navigating medical conditions masquerading as primary psychopathology Anthony D. Smith LMHC, Posted May 29, 2021 “Perhaps some of the most interesting cases of medical conditions...

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Category:  Blog, News
Mother of 10-year-old battling tick-borne disease: ‘his brain is on fire’
May 7, 2021
Mother of 10-year-old battling tick-borne disease: ‘his brain is on fire’

“In Finn’s case, Lyme Bartonella Mycoplasma have been identified as triggers. The disease leads to rage, exhaustion, panic attacks, among other symptoms,” Dean said. “It’s been just...

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Category:  Blog, News
Autoimmune Encephalopathy/ PANS Flares and the Link to Seasonal Allergies
May 7, 2021
Autoimmune Encephalopathy/ PANS Flares and the Link to Seasonal Allergies

April 8, 2019. Somer Delsignore “Many children with PANS/ Autoimmune Encephalopathy who seem to flare despite having a good treatment plan perhaps forget the inflammation of a seasonal allergy....

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Category:  Blog, News
‘PANS’ – The little-known syndrome going undiagnosed in Australian children
May 4, 2021
‘PANS’ – The little-known syndrome going undiagnosed in Australian children

9 News Australia. By Emily McPherson. May 4, 2021 Read Article “It’s a really common and there is a very big story that if you have the wrong kind of...

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Category:  News
Childhood Post-Infectious Autoimmune Encephalopathy Clinic at U Arkansas
April 1, 2021
Childhood Post-Infectious Autoimmune Encephalopathy Clinic at U Arkansas

“The University of Arkansas for Medical Sciences-Arkansas Children’s Hospital (UAMS-ACH) Childhood Post-Infectious Autoimmune Encephalopathy (CPAE) clinic specializes in diagnosis and...

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Category:  Blog, News
A Boy, His Brain, and a Decades-Long Medical Controversy
March 25, 2021
A Boy, His Brain, and a Decades-Long Medical Controversy

Timothy was 10 years old when his personality changed overnight. A concussion during a family ski trip in December 2016 left him unsteady on his feet, but that was just the first sign something was...

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Category:  Blog, News
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Leah’s Story

Leah’s Story

In August of 2014 our daughter, Leah, was 6 years old.  We had just returned home from a month-long trip to Illinois to visit family.  When we arrived home in Arizona, she suddenly (overnight) developed a fear of vomit.

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