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  • What is PANS?
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  • What is PANS?
    • Definition
    • Causes
    • Syndrome vs Disorder
    • Who Gets PANS/PANDAS?
    • FAQs about PANS PANDAS
    • Team Approach Needed
    • Clinical Urgency of Diagnosing & Treating
    • Caregiver Experience
  • Symptoms & Diagnosis
    • PANS PANDAS Symptoms
    • PANS PANDAS Disease Course
    • PANS PANDAS Symptom Severity
    • Diagnosing PANS and PANDAS
    • Symptom Tracking Tools
    • PANS PANDAS Appointment Preparation
    • PANS PANDAS Information for Clinicians
    • Roadblocks to a PANS PANDAS Diagnosis
  • Treating PANS
    • Treating PANS and PANDAS
    • PANS and PANDAS at School
    • Medications
    • Behavioral Health
    • Additional Therapies
    • Find a Provider
  • Resources
    • PANS PANDAS Brochures & Handouts
    • ASPIRE PANS PANDAS Webinars
    • Family Resources
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    • PANS Patient & Family Stories
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PANS In the News

Louisiana families fight rare condition
April 2, 2025
Louisiana families fight rare condition

PANS or PANDAS refers to what some doctors call Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. It’s an often misunderstood and misdiagnosed disease that...

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Category:  Blog, News
Tags:  Legislation
How a Georgia House bill could create options in treating a devastating pediatric diagnosis
March 6, 2025
How a Georgia House bill could create options in treating a devastating pediatric diagnosis

The bill is going to be a huge step forward, but Emily‘s mom April says it’s not a cure the bill does not mandate insurance coverage for the most common and effective...

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Category:  Blog, Featured on Homepage, News
Health Insurers Deny 850 Million Claims a Year
February 12, 2025
Health Insurers Deny 850 Million Claims a Year

The Becks paid $20,000 out-of-pocket in 2023 for Emily’s medical care, including occupational therapy, psychiatric appointments, tests, supplements and medications that insurance wouldn’t pay for...

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Category:  Blog, Featured on Homepage, News
November 15, 2024
Idaho family fights for and wins coverage of treatment for daughter’s rare condition | Opinion

About 90% of the day, she’s bedridden,” he continued, wiping away a tear. “When she’s in a flare, she can’t speak, she can’t walk the majority of the day. She can’t eat or consume...

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Category:  Blog, News
The Inflammation Factor
September 19, 2024
The Inflammation Factor

Therapists need to be aware of when inflammatory disorders can masquerade as psychiatric conditions Therapy Today – September, 2024 – Lucy McDonald is a counselor at the Children’s...

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Category:  Blog, Featured on Homepage, News
A fresh understanding of OCD is opening routes to new treatments
September 11, 2024
A fresh understanding of OCD is opening routes to new treatments

When my daughter was young, she washed her hands a lot. We might have poked what we thought was gentle fun at her, saying she was “a little bit OCD”. Later, she began to disclose “bad...

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Category:  Blog, News
Tags:  OCD
The inflammation connection: Kids with PANS at high risk for arthritis
August 14, 2024
The inflammation connection: Kids with PANS at high risk for arthritis

The disease is typically as awful as it is sudden: Over a few days, children develop severe anxiety and intense obsessive-compulsive behaviors. They barely sleep and may stop eating. Their schoolwork...

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Category:  Blog, News
Tags:  Rheumatology
A totally new kid’: Parents push for coverage of controversial IV treatment for brain condition
June 20, 2024
A totally new kid’: Parents push for coverage of controversial IV treatment for brain condition

Legislation in the Michigan House would require insurers to cover the treatment for children who suffer from a brain condition believed to be caused by...

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Category:  Blog, News
Urgent call for 2024 AAP Red Book® to update strep testing recommendations.
May 24, 2024
Urgent call for 2024 AAP Red Book® to update strep testing recommendations.

ASPIRE and other PANS/PANDAS organizations are joining the PANDAS Physician Network in their efforts to call to the Academy of Pediatrics to update the Red Book’s® recently published...

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Category:  Blog, Clinicians, Featured on Homepage, News
Richlands mom looks to spread awareness about neuropsychiatric disorder after both children diagnosed
May 23, 2024
Richlands mom looks to spread awareness about neuropsychiatric disorder after both children diagnosed

An Onslow County woman is looking to spread awareness about a neuropsychiatric disorder both her children have been diagnosed with, one she said is often misdiagnosed by...

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Category:  Blog, News
Tags:  News 2024
Mother desperate after insurance denies son’s treatment for coverage with serious brain disease
May 17, 2024
Mother desperate after insurance denies son’s treatment for coverage with serious brain disease

KCTV5 By Sharon Chen Published: May. 17, 2024 at 9:51 AM EDT|Updated: May. 22, 2024 at 3:48 PM EDT “IVIG is intravenous immunoglobulins or immune cells that go in and...

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Category:  Blog, Featured on Homepage, News
Many mental-health conditions have bodily triggers:
April 25, 2024
Many mental-health conditions have bodily triggers:

The evolving evidence of the impact of inflammatory disorders and metabolic conditions, like PANS PANDAS, on mental health conditions is discussed in the latest issue of The Economist....

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Category:  Blog, Featured on Homepage, News
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Leah’s Story

Leah’s Story

In August of 2014 our daughter, Leah, was 6 years old.  We had just returned home from a month-long trip to Illinois to visit family.  When we arrived home in Arizona, she suddenly (overnight) developed a fear of vomit.

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