Join ASPIRE on October 9, 2020, for
PANS PANDAS Awareness Day.
Share educational materials to increase
awareness and understanding.
To Share is to Care
PANS PANDAS can be life-changing.
So can your voice.
Become a PANS PANDAS Champion today!
Every year patients with PANS PANDAS go too long undiagnosed and without appropriate treatment. But you can help ASPIRE change that. Whether you have been diagnosed with PANS PANDAS or care about someone who has, we invite you to share your voice in the fight against this devastating disease. By being a PANS PANDAS Champion, you’ll leverage the power of social media and beyond to help raise awareness about PANS PANDAS while lending support to those affected by it.
Becoming a PANS PANDAS Champion is easy. Share the Awareness Videos, change your Facebook Profile Frame, download ASPIRE Information Packets & Handouts to share in person. You can also write your Personal Story for ASPIRE’s website. Talk to legislators on Virtual Voices for Mental Health Day. All it takes is the desire to make a difference.
Change your Facebook Profile Frame
PANS PANDAS Awareness Day is October 9th. ASPIRE has four frames for you to choose from so pick one and wear with pride. Wear your frame and spread awareness.
Two Easy Steps:
- Go to: Facebook Frames
- Search for: ASPIRE PANS PANDAS
Four Profile Frames to Choose From:
- PANS PANDAS Symptoms
- I Love Someone with PANS PANDAS
- Ask Me About PANS PANDAS
- Healing from PANS PANDAS
Share Awareness Materials
ASPIRE has made it easy to educate anyone on PANS PANDAS. We have many informational packets, single-page fliers, and posters about PANS PANDAS for you to download for free or to share directly via the download page.
Some of ASPIRE’s Flyers, Packets, and Posters
- PANS PANDAS Overview Packet
- PANS PANDAS Provider Information Packet
- Information for School Nurses Packet
PANS PANDAS Awareness Videos
Webinar with Dr. O’Connor on PANS PANDAS
October 20 @ 3:00 pm – 4:00 pm
ASPIRE is excited to partner with Advocacy & Awareness for Immune Disorders Association- AAIDA to bring you this educational webinar on October 20th at 3:00pm EST.
Presentation and discussion will be lead by a medical expert in immunology and PANS and PANDAS, Dr. Maeve O’Connor, MD, FACAAI, FAAAAI, FACP.
Join Virtual Voices for Mental Health: An Online Day of Action
ASPIRE is partnering with IOCDF in this year’s Virtual Voices for Mental Health: An Online Day of Action, and you’re invited! This online day of action includes an evening of live programming and a day of advocacy activities that you can do from your phone or computer.
Donate Plasma! Organize a Plasma Drive!
Join ASPIRE in donating plasma today to help minimize the shortage affecting PANS patients across the country. The more plasma donated, the more IVIG can be made. Producing IVIG is a complex process. The impact of donation is simple; it improves and saves the lives of PANS patients and people with primary immunodeficiency, CIDP, and other rare diseases across the world.
For more information, contact ASPIRE’s Plasma Drive Coordinator. See the link below for information on •About Plasma •How to Donate Plasma •How to Host a Plasma Drive •Information Packets
Be a hero. Empower. Support. Donate.
With your support, we can impact our community in a lasting way. You are an integral part of the progress our community needs. The lives of hundreds of patients of PANS/PANDAS are at stake. Every gift helps us continue our work to empower all affected by PANS, PANDAS and immune-related encephalopathies.
PANS is a devastating disorder but recovery is possible. Early diagnosis and treatment lead to improved outcomes. Unfortunately, many PANS/PANDAS patients do not receive a timely diagnosis or appropriate treatment due to a lack of education about this medical condition. When access to care is delayed, symptoms can worsen and become chronic. ASPIRE aims to improve the lives of those affected by PANS by closing the gap between the onset of symptoms and the start of treatment.
With your help, ASPIRE will continue to educate the medical, school, and family communities about PANS/PANDAS while advocating for affordable, proven treatments. Every gift helps us continue our work to support all those affected by PANS, PANDAS and immune-related encephalopathies.