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Rare Disease Day 2021

ASPIRE is proud to be included as a friend of NORD's Rare Disease Day efforts.

Eating Disorder Awareness Day

One of the primary symptoms of PANS is Severe Eating Restriction. Over 50% of PANS patients will have non-life threatening eating restrictions but more severe than picky eating. While 17% will experience such severe eating restrictions that it has become life-threatening due to extreme and rapid weight loss of at least 10%-15% of their body weight. 

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ASPIRE Participates in Rare Across America

ASPIRE joined several Congressional meetings organized by Rare Disease Legislative Advocates (RDLA) on March 3rd and 4th, 2021 to talk about PANS PANDAS as well as issues that affect Rare Disease. Senators and Representatives were asked to support important rare disease FY 2022 appropriat

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CEC National Convention Panel on PANS PANDAS

Session Abstract: This presentation provides an overview of how PANS/PANDAS impacts classroom functioning across physical, socio-emotional, academic, and behavioral domains. Presenters will describe strategies and initiatives to support students with these PANS/PANDAS at the classroom, school, and district levels.

Doctor Day

Today is National Doctor's Day!
Pick up the phone and send an email to the PANS PANDAS doctor or doctors who have made a difference in your life!

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Sibling Awareness Day

PANS PANDAS affects the whole family. See two articles Therapy for Siblings of Children with PANS PANDAS Sibling Support in PANS PANDAS and look for Sibling stories in our PANS family story section.