A number of universities have started multidisciplinary clinics since 2018. These centers are improving access to care and advancing high-quality research. Massachusetts General Hospita University of...
National Support Pandas Physicians Network – PPN https://www.pandasppn.org Mending Minds Foundation https://www.mminds.org The Pace Foundation Arizona http://www.pacefoundation4kids.org/...
A Child's Introduction to Understanding PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococci) is a book aimed at helping parents explain to children this complex...
his book is about one family’s journey with PANS (Pediatric Auto-Immune Neuro-Psychiatric Syndrome). PANS is an illness that is conservatively believed to affect more than 160,000 children in the...
What causes mental illness? We've long blamed stress, trauma, and brain-chemistry imbalances. But a new theory is quietly achieving critical mass. In INFECTIOUS MADNESS, award-winning science writer...
A groundbreaking approach to understanding and parenting children who frequently exhibit severe fits of temper and other intractable behaviors, from a distinguished clinician and pioneer in this...
The story of one mother’s fight against the medical establishment to prove the link between infection-triggered PANDAS and her son’s sudden-onset OCD and Tourette...
On Brain Inflamed we share information from those in the trenches caring for children with autoimmune brain diseases like PANDAS, PANS and Autoimmune Encephalitis. Physicians, Scientists, Parents-...
Parents push for coverage, awareness of rare syndrome. Local families grappling with a rare and elusive syndrome will make the case for greater acknowledgement and support at the State House...
Atlanta has some of the best pediatric hospitals in the country, yet they do not recognize this disorder (PANS/PANDAS) nor does insurance provide coverage.
I started searching for PANDAS specialists, only to find there were 3 in the state of Georgia and 2 of them were not taking new patients. Only 1 was taking new patients, but they did not accept insurance.
Unfamiliar with PANDAS… I had no idea there was a possible connection between his strep and his OCD symptoms. Upon our return, we finished up his antibiotic and within days he was exhibiting his OCD behaviors again.