Your support helps shorten the time between symptoms and treatment. By funding education and advocacy, you drive real change.
Your year-end gift creates lasting impact—one patient, one family, one future at a time.
Empower. Support. Donate.
With your support, ASPIRE equips educators, families, legislators, and medical providers with the knowledge and tools to recognize and treat PANS/PANDAS.
PANS can upend lives but with timely care, recovery is possible. Your support helps patients get the right treatment sooner, reducing suffering and improving outcomes.
Every donation fuels education, advocacy, and resources that make a real difference. Together, we can shorten the time between symptom onset and treatment, transforming lives in the PANS/PANDAS community.
You are an essential part of this progress.
ASPIRE Programs
ASPIRE in Action – We empower and connect our community with tools and resources for advocacy, education, support, and awareness.
For full screen, click the symbol on the lower right hand of the video.
ASPIRE’s 5 Core Audiences
Your donation directly funds ASPIRE’s programs, making our work possible. You help us educate, connect, and provide essential resources to five core audiences in the PANS/PANDAS community. Please help ensure that ASPIRE can continue to run and expand our programs. With your contribution, we can reach more schools, equip volunteers across the country with the materials they need, host more events, and advance advocacy efforts nationwide.
We can’t do it without you: Reaching 5 Core Audiences
- National General Public
- Families & Patients
- Schools & Educators
- Legislators
- Providers & Researchers
Expanding Audience
-
20,000+ Followers on Social Media
-
9,0000+ Newsletter Subscribers
-
6,000 ASPIRE Facebook Group Members
Our social media following grows every day, introducing thousands of people to PANS/PANDAS for the first time. By sharing our posts not just on Awareness Day but every week, you help us expand our reach and connect more families, patients, and professionals to critical information. Together, we can grow our community beyond the 250,000+ people we already reach across with over 4 million views Facebook, Instagram, LinkedIn, and YouTube.
Since launching the ASPIRE Facebook Group, we’ve built a thriving community of over 6,000 parents, caregivers, and adult patients. The FB Group is a hive of support and information for those navigating PANS/PANDAS. If you’re eligible, join us today!
And don’t forget to subscribe to our newsletter—you’ll stay in the loop on upcoming events and important updates.
You Can Make the Difference
Your donation directly supports families and patients, helping us continue to provide vital resources and one-on-one guidance
Supporting Community
-
2,750+ Support Emails Answered
-
80 ChitChat Support Meetings Held
-
27 ChitChat Locations/Topics Provided
One-on-One Support
We provided one-on-one support to an unprecedented number of families and individuals. Almost 3,000 parents, caregivers, and adult patients reached out to us for guidance. We’re committed to being there for our community, one person at a time.
ChitChat Support Meetings: A Growing Lifeline for Our Community
Now in its second year, the ASPIRE ChitChat Support Program has become a resounding success. What began with about 30 meetings has grown to more than 80 in 2025—proof of how deeply this space is needed.
Held online or in person, ChitChats give parents of children with PANS and adults with PANS a place to connect, share, and feel understood. Each meeting strengthens our community and reminds us that none of us are navigating this alone. We are looking to expand, especially our in-person locations!
Thank You to Our Volunteers
We’re deeply grateful for our incredible volunteers who dedicate their time to leading ChitChat meetings and supporting our community.
Increasing Outreach
-
65+ Professional Developmental Lectures
-
34 #LightUp4 PANS Locations
-
15 Outreach Events
Your Support in Action
Your donations help us expand awareness and education on PANS/PANDAS, reaching beyond our immediate community. We cannot move the needle forward without your support.
Improving Outcomes Through Training & Outreach
This year, ASPIRE’s education efforts grew dramatically. We delivered more than 65 professional development & school in-service lectures nearly triple last year’s number—reaching school nurses, educators, and healthcare professionals across the country.
We also presented at the New Jersey School Nurse Conference and tabled at multiple conferences, fundraisers, and community events, expanding awareness and building new partnerships.
Our School In-Service program continues to receive outstanding feedback and remains one of our most impactful initiatives.
Lighting Up the World for Awareness
For Awareness Day on October 9th, ASPIRE joined forces with over 15 advocacy organizations to light up over 195 structures globally. ASPIRE had 34 locations lit up nationwide, and many held awareness events. A highlight was seeing Paycor Stadium lit up green in honor of our community! We hope you find the video and photographs as awesome as we do!!
Donors like you keep these critical programs thriving.
Your support ensures families and patients have the resources they need for hope and healing.
Increasing Education
-
40,0000+ Views of ASPIRE Webinars
-
21 New Handouts & Articles Written
-
20,000+ Education Materials Downloaded
Empowering Through Knowledge
ASPIRE turns complex PANS/PANDAS information into clear, actionable resources that empower families, patients, and professionals.
Sharing Materials That Make a Difference
Our library of over 50 toolkits, handouts, worksheets, and posters continues to be a cornerstone for the community. These resources have been downloaded more than 40,000 times, and many organizations distribute them widely at conferences and events. Core favorites include the Provider Information Toolkit, Comprehensive Education Toolkit, and PANS & Eating Disorders Toolkit.
This year, we added new articles and handouts addressing continuing needs, including Home School Resources, Restricted Eating Resources, The Sibling Experience in PANS/PANDAS, and College Planning. Look for a few new resources coming out soon!
Webinars
Our webinar library covers Treatment & Scientific Updates, Behavioral Health, Integrative Medicine, School Support, and Family & Patient Support. Our 8-minute About PANS/PANDAS video has been viewed over 16,000 times, and companion videos from Dr. Susan Swedo highlight the importance of prompt recognition and treatment and the cost of inaction.
Expanding Knowledge
We continue to update our website with research, news articles, books, podcasts, and lectures to create a comprehensive, go-to resource for the PANS/PANDAS community.
Supporting Advocacy
-
13 States Supported
-
15 Strategic Partnership Programs
Improving Outcomes Through Advocacy
This year, ASPIRE continued to play a key role in advancing policy and systems change for the PANS community. With your support, we provided direct advocacy guidance and resources to 13 states, helping local leaders strengthen their efforts and push for better care, recognition, and protections.
We also maintained 15 strategic partnerships with organizations and advocates across the country. These collaborations ensure that ASPIRE remains a trusted voice at the table, shaping national conversations, sharing expertise, and helping drive the broader movement toward improved outcomes for patients and families.
ASPIRE’s advocacy work continues to grow, and your support keeps us moving the needle—state by state, partnership by partnership, toward a future where every patient’s needs are understood and met.
Donors like you are the driving force behind this important work.
Achieving the ASPIRE Mission
We Aspire to Improve
In July 2019, we launched national organization called ASPIRE, Alliance To Solve PANS and Immune-Related Encephalopathies. We are experienced local, regional, and national nonprofit leaders building on lessons learned in our organizations. Our professional experiences in allied health professions, project management, and entrepreneurship guide our work.
We Aspire to Empower
We are actively working to bring together the patient, parent, provider, and research communities acting as a conduit to connect the stakeholders who affect outcomes of those affected by PANS/PANDAS. ASPIRE is focused on providing practical tools to increase local, state, regional, and national advocacy efforts to accelerate improvements in access to diagnosis, treatment, and quality of life for affected individuals and families. We are collaborating with experts in their field to create national programs that will empower and connect our community with tools and resources for advocacy, education, support, and awareness.
Your Year-End donation will help to close the gap between the onset of symptoms and the start of appropriate treatment. We simply can’t do it without you.
Your support will make a real, lasting impact on the lives of those who are still in need.