Monthly Archives:
January 2019
What Happened to My Child?: A Mother’s Courageous Journey to Save Her Son
In this true story, one mother shares her journey to find healing for her son and her family. She unpacks the terrifying heartache of suddenly losing the son she once knew, the fierce battle that a...
Psychometric Properties of the Pediatric Acute-Onset Neuropsychiatric Syndrome Global Impairment Score in Children and Adolescents with Pediatric Acute-Onset Neuropsychiatric Syndrome
Leibold C, Thienemann M, Farhadian B, Willett T, Frankovich J.
J Child Adolesc Psychopharmacololgy-2019
Results: The GIS shows excellent discriminant validity, distinguishing patients with PANS from healthy controls. The scores on the GIS show an acceptable level of agreement with the clinician-reported CGAS. The regression line in the Bland–Altman plot had a positive slope, indicating that parents tend to report higher disease severity than clinicians at higher levels of disease severity. Correlation was higher during disease remissions than during disease flares (r = −0.69 vs. r = −0.48). All disease severity scales predicted GIS in the expected direction
Empowering Families in the Face of Pediatric Acute Onset Neuropsychiatric Syndrome (PANS)
This live webinar will first briefly discuss how to differentiate the PANS presentation from more typical anxiety disorders and OCD. One of the first goals is helping parents find and connect with...
Angela Knapp Series: PANS and PANDAS with The Experts: Dr Nancy O’Hara MD, MPH, FAAPM
Nancy O'Hara MD, MPH, FAAPM share her expertise on how to diagnose, treat and manage PANDAS and...
Angela Knapp Series: PANS and PANDAS – Darin Ingels, ND, FAAEM
A review of PANS and PANDAS with Dr Ingels. An introduction to how gut health influences susceptibility, other reasons for susceptibility and Low Dose Immunotherapy among other non-conventional...
MCPAP – Pediatric Neuropsychiatric Disorders (Associated with Streptococcus): PANDAS/PANS
Presented by: Michele Casoli-Reardon, MD, MCPAP North Shore Medical Center Team Medical...
Is it PANDAS?
There’s nothing black and white about this mysterious and controversial diagnosis. If your child suffers sudden mental health problems following a case of strep throat, this autoimmune condition...
European Advocacy Organizations Response to PANDAS/PANS Article
Gerland Gunilla, Mogyorosi-Post, Anita, Cafferky Karen, Galardini Giuliana, Granli Kristin, Tuckey Georgia.
Journal of Pediatrics-2018
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As representatives of the pediatric acute-onset neuropsychiatric syndrome (PANS)/pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANDAS) organizations in Europe, we have concerns about the commentary by Gilbert et al,1 given its potential to negatively influence the treatment of children suffering from these devastating conditions.