Families Of Children With PANDAS Disorder Still Struggling To Get Insurance Coverage

In 2017, then-Gov. Bruce Rauner signed into law what was known as Charlie’s Law that required insurance companies to cover treatment costs for certain auto immune diseases in children.

One of those conditions is called Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep (PANDAS). And approximately one in 200 children suffer from it. 

PANDAS advocate Wendy Nawara sat down with us to talk about how despite the law, some insurance companies are still not covering treatment costs. 

NPR Illinois-2109